Friday, June 11, 2010

an oldie but a goodie

The topic of how to track Trevy's seizures came up during today's meeting, which in turn jiggled free a website lodged in the recesses of my memory.


A wonderful tool that I never used...


because...


well...


because it was just too dang hard to tally each seizure. And back when I first found them the tools they offered were very limited. But I revisited the site today...and to my pleasant surprise they've updated everything! Including now having an Infantile Spasms specific log...which is just amazing.



Go check it out here and see for yourself!



Thank you Seizure Tracker for the wonderful FREE service you're providing families living with epilepsy!

5 comments:

Anonymous said...

LOVE seizure tracker!!!! This is what I use to keep track of Hannah's seizures. Love all the graphs and the upgrades!!! Docs love it too. (also love the med's tracker...so nice to not have to remember the order of all her meds!!!)
Hope your IEP went well!!
Marcia K

Mike said...

Not sure how much thought the Seizure Tracker people put into the IS form....it shows Alcohol or Drug Use as a possible trigger. Since the vast majority of IS kids are under 2 years of age I'm fairly certain alcohol and drugs are probably not involved. I am also guessing that at 2 there aren't too many Hormonal Changes going on.

Dawson said...

been using this for a while and we LOVE it!! I too want to say thanks to Seizure Tracker. We Email all the entries to his Neuro just before we leave the house for a a visit and by the time we arrive, they have his stats ( and usually a plan)

Were LOVIN Trevy's progress and think hes just SO stinkin cute!!

Colby said...

This tracker is new to me, Danielle....Thank you SO much!! Was just needing to update Colby's calendars (appts. Tuesday & also in July)....Going to try this out...And also pass it on to my friends....

Again...thanks for being our eyes & ears!!!

Cyndi

Alicia said...

The family who developed this has a son w/ TSC and epilepsy. What an amazing resource. There is an amazing video on youtube called "Tracking Evan", It is about developing the site, and ends w/ him having brain surgery. You'll love it. :)