tag:blogger.com,1999:blog-2600278351249979209.post1190947692189354109..comments2023-06-22T04:20:49.280-07:00Comments on happy being trevy: EEG-brrrrsDanielle http://www.blogger.com/profile/04484341169494632974noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2600278351249979209.post-55344666656471862992007-12-19T11:43:00.000-08:002007-12-19T11:43:00.000-08:00I'm trusting that you're right Jen! I think we've ...I'm trusting that you're right Jen! I think we've been walking around "numb" for the past few weeks...and then last night it hit me hard. And I just felt like I was gonna drown in sadness. All the sadness of knowing & the sadness of not knowing & the sadness for other mom & dads & babies going through even more! I haven't cried in awhile and it really just snuck up on me - and was very heavy last night.<BR/>I totally need a cuppa joe now! <BR/>Anyway...in my heart I know you're right that it'll get easier...it just isn't right now.<BR/>...danielle <BR/><BR/>btw...I think Trev makes EEG wear look pretty darn cutsie! Perhaps he should model for the hospital...and that can cover all the medical bills! :oPAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-26807753888409090322007-12-19T08:41:00.000-08:002007-12-19T08:41:00.000-08:00I have SO MANY sad pictures like that. It gets bet...I have SO MANY sad pictures like that. It gets better, for you and him. MAybe that's sad in it's own right, that close to four years later I can say it gets easier. He still hates having the electrodes put on, but then he is fine.<BR/>JenJSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-23018270792424146192007-12-18T05:45:00.000-08:002007-12-18T05:45:00.000-08:00Fortunatly Trev hasn't had many of the awful side ...Fortunatly Trev hasn't had many of the awful side effects - other than high BP. <BR/>The EEG report wasn't really good -but wasn't really bad either. Our neuro said it wasn't readable because he was awake & she needs sleep patts. Altho when she compared his previous awake w/this one she said it showed improvment.<BR/>Anyway...so goes life with IS babies right?! No real answers! :O) <BR/>Happy holidays...Sheena is so sweet!<BR/>...danielleAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-80267530385931933072007-12-17T23:11:00.000-08:002007-12-17T23:11:00.000-08:00HOpe the result was OK. Sometimes the EEG can be ...HOpe the result was OK. Sometimes the EEG can be reassuring. We learnt that some of Sheena's behaviours (like lip smacking and grimacing), were not seizures, they were just her smacking her lips and grimacing. Pred/ACTH can make babies really sick. I think I underestimated how sick Sheena was while getting treated. I'd have been more tender with her/more protective, and not have stubbornly taken her out and about with me all the time just because I wanted her to be normal.jotcr2https://www.blogger.com/profile/01366448629677893285noreply@blogger.com