tag:blogger.com,1999:blog-2600278351249979209.post1318176803265115819..comments2023-06-22T04:20:49.280-07:00Comments on happy being trevy: beating the drumDanielle http://www.blogger.com/profile/04484341169494632974noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2600278351249979209.post-12832711121182522372008-07-21T06:33:00.000-07:002008-07-21T06:33:00.000-07:00Patrick...My thoughts on this issue are way too ma...Patrick...<BR/><BR/>My thoughts on this issue are way too many to condense into a comment forum.<BR/><BR/>I have instead opt-ed to reply via a post...which can be found at <BR/><BR/>http://trevorshope.blogspot.com/2008/07/in-moderation.html<BR/><BR/>of by clicking my ACTH label and following down the the post titled "in moderation"<BR/><BR/>...danielleDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-54169630641317548822008-07-15T06:20:00.000-07:002008-07-15T06:20:00.000-07:00glad acthar helped trevor, but your friend is very...glad acthar helped trevor, but your friend is very wrong on the acthar pricing of $60k. furthermore, quesctor has been free acthar to anyone who's been denied by insurance. frankly, i don't know any other drug company who's currently doing that for people, especially infants and young children. i know you have good intentions, but it's really unfair for you to spread negative information on a company that helped your son, especially whent he information is wrong. God bless your family. <BR/>PLUnknownhttps://www.blogger.com/profile/12662909102633293554noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-81093325259294617982008-05-22T11:27:00.000-07:002008-05-22T11:27:00.000-07:00Jen - I almost called you I was SO outraged. And t...Jen - I almost called you I was SO outraged. And then defeated. Honestly, what is it going to take? I'm ready to take Trevor & sit on the steps of Congress and MAKE them look at him. And listen! I am all for free-market...but this is outrageous. More times than not human greed when left unchecked becomes this beast that is Questcor. Grrrrrrrrrrrr! I'm going to check out the site you left now...<BR/><BR/>J & A - thanks for the prayers...and I'm with you. The ACTH issue sickens me. <BR/><BR/>Our prayers are with you & your little man too! <BR/><BR/>...danielleDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-49611077780908386402008-05-22T10:46:00.000-07:002008-05-22T10:46:00.000-07:00Read this, it says the cost per vial is only $2326...Read this, it says the cost per vial is only $23269<BR/>http://messages.finance.yahoo.com/Stocks_%28A_to_Z%29/Stocks_Q/forumview?bn=79779<BR/>read the topic "New Distribution Agreement"<BR/><BR/>To Dawson's parents...I hope the days between seizures keeps growing!JSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-56726293868047533402008-05-22T08:59:00.000-07:002008-05-22T08:59:00.000-07:00I would like to beat the ACTH drum with you. I am...I would like to beat the ACTH drum with you. I am sickened and disgusted at the price of one vial of this drug. Childrens lives and well being are at risk so that one group of people can stick more money in their pockets. It literally makes me sick to my stomach. ACTH helped Dawson tremendously. It completely stopped those hard Tonic seizures and it also stopped the Hypsarethmias (sp) which has allowed him to progress and develope well. He is still having seizures despite the treatment but its nothing like what it was before the ACTH injections. What if our insurance wouldnt pay?? where would Dawson be?? What is happening to the kids whos parents have no insurance?? IT JUST PLAIN OLE MAKES ME SICK!!!<BR/><BR/>On a side note, hope Trevor is doing well and wanted you to know we are praying for himDawsonhttps://www.blogger.com/profile/04109775702931251072noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-42827757224952762412008-05-22T07:17:00.000-07:002008-05-22T07:17:00.000-07:00There are no words, fit for print, that can fully ...There are no words, fit for print, that can fully explain my outrage! And we didn't even use the stuff!<BR/><BR/>I would hope that Ovation Pharma can use this to help sway the FDA to approve Vigabatrin.JSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.com