tag:blogger.com,1999:blog-2600278351249979209.post2664594629418504737..comments2023-06-22T04:20:49.280-07:00Comments on happy being trevy: to punch Matt Lauer in the faceDanielle http://www.blogger.com/profile/04484341169494632974noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-2600278351249979209.post-21369099292720713592011-01-20T10:24:56.276-08:002011-01-20T10:24:56.276-08:00Wow. I didn't see the segment, but based on yo...Wow. I didn't see the segment, but based on your description I'm surprised the mother didn't tear out his throat with her teeth. She must be a model of restraint or on some excellent anti-depressants.<br /><br />Were it me, I would investigate getting Trevy a dog sooner than later. There are waiting lists and training takes time. There are benefits to development for children who have dogs, so it might be more subtly beneficial than just alerting others to seizures. Plus the sooner you get involved, the sooner you will know what you will need to do in your home and at school to make a good transition into life with an assistance dog.Rachelnoreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-85803297630527782812011-01-06T13:09:04.045-08:002011-01-06T13:09:04.045-08:00WOW, I am utterly amazed and sickened that people ...WOW, I am utterly amazed and sickened that people can be like this. <br /><br />I mean I know there are lot of people out there uneducated about so many things epilepsy related, and heck, just special needs related. But for it to be on television and to make it seem like the mother, son, and dog are the issue is saddening.<br /><br />The boy is beautiful, and all Matt could do was look like he was diseased and bothered by him, and then to say how he obviously functions beneath his age....that would have got him knocked to his knees.<br /><br />It just makes me worry what things will be like when Kylie goes to school...just because something is new to people (ie..having a seizure alert dog) doesn't mean that it isn't necessary. It just proves the height on ignorance regarding these catastrophic forms of epilepsy.<br /><br />And there is no way that the teacher can do what the dog can do...for so many reasons. I just spoke with a woman yesterday and she watched Kylie's IS videos, and said she couldn't notice them....how do you expect a teacher to when they have a classroom full of kids.<br /><br />Yep, you got us fired up. But even though it is frustrating, it gives us fuel for fighting for our kids in the future.<br /><br />Sending hugs, and bench presses to warm up for Matt Lauer.MJStumphttps://www.blogger.com/profile/05506100079795141155noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-28056928993275957862011-01-06T10:47:40.406-08:002011-01-06T10:47:40.406-08:00I love seeing you this fired up. Now granted, Laue...I love seeing you this fired up. Now granted, Lauer is not known for his top-notch interviewing skills to begin with, and he never really knows, for the most part, a hole in the ground from [CENSORED BY AUTHOR], but even a guy with his simplistic skill sets ought to know better.<br /><br />Sadly, Matt the Chimp is like many of the other people in the country...they just don't know jack or [CENSORED BY AUTHOR] about the condition or what it involves and it sucks that the only real financial powerhouse we have in our corner is one that forces us to take their expensive drug that works, of you're lucky, less than half the time.<br /><br />Hell...even the Axelrod's can't seem to draw much national attention to the real issues surrounding Epilepsy as a whole, and they are in the [CENSORED BY AUTHOR] White House.<br /><br />Sucks.<br /><br />But it isn't just Italian blood. It's Italian blood mixed with Maternal, mixed with Special Needs mixed with Fed the [CENSORED BY AUTHOR] Up blood.<br /><br />See? I can control myself.blogzillyhttps://www.blogger.com/profile/08268388544631653375noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-81994479879129397482011-01-06T08:59:33.288-08:002011-01-06T08:59:33.288-08:00Well...I didn't see the interview so I can'...Well...I didn't see the interview so I can't comment on that.<br /><br />But...something did jump out at me in this post. Where you mentioned that his teachers and therapists don't always see the clusters. I can so identify with that. I've always had the EXACT same battle with myself. Should I be angry that they're totally oblivious, or just inform them Austin's probably not interacting with them because his brain is seizing. UGH. Problem is, we've seen doctors that have completely missed them while they're happening. I've never known how to handle that.<br /><br />I may just have to google this interview...Hollihttps://www.blogger.com/profile/00535016211470087504noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-86888927252911061342011-01-06T07:33:32.094-08:002011-01-06T07:33:32.094-08:00You could send the permalink to this post (in all ...You could send the permalink to this post (in all ways possible) to the network Laur works for...just saying. BarbaraAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-30090997163386147492011-01-06T06:29:01.153-08:002011-01-06T06:29:01.153-08:00I seen this the other day posted on facebook and I...I seen this the other day posted on facebook and I definitely got into a very heated argument in the comments with some lady who kept blabbering about how the teacher can do the same thing just fine! This woman would not be deterred, whether it was just ignorance or misunderstanding on her part. She was more concerned about the kids in the school with dog allergies and how even if they are in different classrooms the dander still travels in the air. I made a simple point that I'm sure that there are other students in the school that have pets and that the dander arrives in the school on the kids' clothes. I don't recall seeing another post from her, but I also had to get away from there before I went totally balistic on people. All I could think of was Trevor, Bennett and Sophie and I just wanted to scream at these people in all of your defense. <br /><br />Not to mention that not allowing the dog to go to school with him is against the American Disabilities Act....... *sigh* Stupidity runs amok in this country I'm afraid.Adestahttps://www.blogger.com/profile/08255048845212923176noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-58650809527507186222011-01-06T03:57:50.552-08:002011-01-06T03:57:50.552-08:00Erin...I love you! I keep chuckling at your "...Erin...I love you! I keep chuckling at your "been in the hospital too long" line. And you're probably right...hospital exhaustion was coloring my perception. <br /><br />...dDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-44608047583160670762011-01-05T18:58:17.409-08:002011-01-05T18:58:17.409-08:00Oh man. I am glad you were not the one being inter...Oh man. I am glad you were not the one being interviewed. Or, maybe you should have been the one interviewed?.... Would have brought a ton of attention to issue of Children with Epilepsy. Headline: "Mom beats interviewer down because of stupid comments and questions asked about Epilepsy dog". I would bail you out.;)<br />There is a funny spoof on the Stupidity about Type 1 D and I am going to put it on my blog. Ignorance is not limited to Epilepsy, so we it does not discriminate.kristenhttps://www.blogger.com/profile/12210614912861994758noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-58572699017410211382011-01-05T18:51:50.625-08:002011-01-05T18:51:50.625-08:00LOL. I think you have been in the hospital too lo...LOL. I think you have been in the hospital too long:-) I didn't interpret Matt's comments the way you did. Part of the questioning was typical reporter stuff to present the school's poing of view.<br /><br />Fortunately, the law is on the parent's side. The school district apparently has lawyers who are more interested in racking up legal fees than doing what the law requires. All this at taxpayers expense!<br /><br />Good luck with the EEG results.<br /><br />ErinAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-27910563188890700782011-01-05T17:24:38.538-08:002011-01-05T17:24:38.538-08:00Hmm if anyone said that Emma functions way below h...Hmm if anyone said that Emma functions way below her age level IN FRONT OF HER, I would blow. Delayed, not deaf.Sineadnoreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-978487521530415822011-01-05T11:47:27.352-08:002011-01-05T11:47:27.352-08:00Oh.
My.
Gawd.
In today's world...those insens...Oh.<br />My.<br />Gawd.<br /><br />In today's world...those insensitive, stupid comments just blow my mind. <br /><br />I would love a seizure dog for Rhett. Love, love, love! He has these moments when he stops and looks at me...with panic in his eye...I ask if he's ok and he says I'm fine, like he's in a trance....if I ask again he says it a little more forcefully and grouchily...and then says he feels funny in his heart. Aura? Seizure? Not sure. But I bet that wouldn't be enough for a that reporter....and I highly doubt any teacher would catch it. <br /><br />Hope Trevy is doing okay and gets out of the hospital soon....with results that are better than you are expecting.<br /><br />Hang in there Sweetie!legomasterhttps://www.blogger.com/profile/04886167606579197495noreply@blogger.com