tag:blogger.com,1999:blog-2600278351249979209.post3902174713045397400..comments2023-06-22T04:20:49.280-07:00Comments on happy being trevy: always with an eye towards the horizonDanielle http://www.blogger.com/profile/04484341169494632974noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-2600278351249979209.post-23028212401574877542018-06-07T08:03:31.829-07:002018-06-07T08:03:31.829-07:00Beautifully written -
People don't understand...Beautifully written - <br />People don't understand - I constantly have to tell friends and family why I don't want to travel - at this point travel would involve leaving my daughter home. People say , "she has a nurse - you can leave her." I don't think any of these people would leave their own child if he/she was suffering. I know the only comfort I have to give my daughter is my presence. I often say that now the best thing I can do for her is just love her and hold her. <br />I don't even try to explain it to others anymore because it's painful to keep trying to explain living with epilepsy . The grandparents used to always ask " Why did she stop speaking? Remember when she used to sing "Happy Birthday" and tell us "I love you" - Yes I remember all of that but if I think about that the sadness will slay me. <br />I think this life with epilepsy is like watching your child trying to cross a major highway - you don't know when they're going to be hit and you can't protect them. XOMaureenhttps://www.blogger.com/profile/04812516135524981857noreply@blogger.com