tag:blogger.com,1999:blog-2600278351249979209.post4056667223607144808..comments2023-06-22T04:20:49.280-07:00Comments on happy being trevy: impromptuDanielle http://www.blogger.com/profile/04484341169494632974noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-2600278351249979209.post-76876484478296532952008-10-22T17:51:00.000-07:002008-10-22T17:51:00.000-07:00Love you all Danielle! We carry you in our hearts ...Love you all Danielle! We carry you in our hearts and prayers.blondiehttps://www.blogger.com/profile/07336387861228546317noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-20631024376473825282008-10-18T09:25:00.000-07:002008-10-18T09:25:00.000-07:00First, always feel grateful for treatment...let th...First, always feel grateful for treatment...let the guilt go. Trevy deserves all this and more! I too feel this gulit being in Canada and not having the financial concerns of care that you all have down south...but it doesn't help either of us other than it makes me more aware and grateful. Some days it's hard to find things to be grateful for when in the midst of health challenges isn't it? <BR/>Second, oh your heart must be aching and twisted and hopeful and more through all of this. I do hope for answers and plans of action for Trevy as an outcome of this testing/EEGs, etc. Lean on all your supports through this. I hope you have a good trip to Boston, that your family does well while you and Trevy are away, and that you find kindness in all the strangers that you meet on this journey. <BR/>The mad cry from Trevy cracked me up! I get that. That was the FIRST time R yelled/screamed in absolute anger was when we went in for his third EEG. He was not impressed with being held down to have the electrodes attached and he YELLED....it was fabulous!:) Yay for Trevy!!<BR/>I'll be praying and thinking of Trevy, you & your family daily.<BR/>Good luck!Mrs. Mhttps://www.blogger.com/profile/02626193534014237894noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-74304865309397515052008-10-18T07:49:00.000-07:002008-10-18T07:49:00.000-07:00I'm moving to where you live!!! I don't know why ...I'm moving to where you live!!! I don't know why we've had such struggles, but i'm ecstatic for anybody that has a great team surrounding them! I'm all for there being a standardized protocol for IS kids. That would be amazing!! I felt bad for reading about Trevy's angry cry with a smile on my face, but that is sooooo good that he has the recollection. I' m so glad to be there to support ya, you've been my sunshine on some cloudy days too! Here's to hopefully some brighter days for us all soon, b/c the rain storms have lasted for long enough.Monica~ James~ Connorhttps://www.blogger.com/profile/02401218928219589164noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-38059901902136159262008-10-17T13:06:00.000-07:002008-10-17T13:06:00.000-07:00I know what you mean about feeling a bit guilty fo...I know what you mean about feeling a bit guilty for easy access to essentials, such as the EEG. I wanted a 24 hour VEEG last week, so I called Jen, the EEG tech at Hope and she had already read KC's caringbridge page and was expecting my call. We checked in less than a week later. My heart hurts for the people who have to fight for that. It should be a given. Anyway, sending lots of prayers your way. For what it's worth, I'm so proud of you for how you are handeling everything with grace and courage. Your kids are lucky to have you for a Mom.<BR/><BR/>KarenKC's Warrior Mamahttps://www.blogger.com/profile/08500787582576519710noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-32186062438087823432008-10-17T10:08:00.000-07:002008-10-17T10:08:00.000-07:00I am only so happy to be part of the support team!...I am only so happy to be part of the support team!<BR/><BR/>Don't panic about the right side activity... there is a very real possibility that you are just seeing some generalization of the activity. If it's STARTING on the left, there can still be a left foci. If that foci is removed, the generalization "should" cease.<BR/><BR/>Hoping for an easy trip to Boston!JSmith5780https://www.blogger.com/profile/16954759123115546248noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-24779433848608270642008-10-17T09:45:00.000-07:002008-10-17T09:45:00.000-07:00Love you bunches, MomLove you bunches, MomJoanne Foltzhttps://www.blogger.com/profile/09635915989772149942noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-60210349440378605432008-10-17T09:31:00.000-07:002008-10-17T09:31:00.000-07:00it's so good to hear such hope & promise i...it's so good to hear such hope & promise in both ur's & shanna's blogs lately! glad that things r looking bright for the both of u! glad u're both "feeling the love"!!! ;0)<BR/><BR/>u're my hero!<BR/>sharonMama Skateshttps://www.blogger.com/profile/10759832371415292719noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-8640846518392843542008-10-17T09:29:00.000-07:002008-10-17T09:29:00.000-07:00In the midst of all of this, all I can think about...In the midst of all of this, all I can think about is that Trevy remembered. WOW. That is amazing. Sophie has had at least a dozen EEGs in her short lifetime and she never remembers. She has had probably 10 in her neuro's office (they have their own EEG tech and EEG room). She always walks into that waiting room without even a whimper. It is not until they actually touch her head that she starts crying. Trevy is making the connection. His brain is processing the information. Hold on to that.Sophie's Story by Elainehttps://www.blogger.com/profile/00415731740298071423noreply@blogger.com