tag:blogger.com,1999:blog-2600278351249979209.post763717770332965135..comments2023-06-22T04:20:49.280-07:00Comments on happy being trevy: quick thoughts for the weekendDanielle http://www.blogger.com/profile/04484341169494632974noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-2600278351249979209.post-8858751319232913382009-07-20T06:19:56.352-07:002009-07-20T06:19:56.352-07:00Glad to hear Trevy's levels have settled back ...Glad to hear Trevy's levels have settled back to normal.Adestahttps://www.blogger.com/profile/08255048845212923176noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-12010008515139650962009-07-19T14:39:44.888-07:002009-07-19T14:39:44.888-07:00So good to hear that despite everything the seizur...So good to hear that despite everything the seizure cloud is lifting and letting his little spirit shine through! <br />Glad to read that you all enjoyed your all american date. Much deserved!Mrs. Mhttps://www.blogger.com/profile/02626193534014237894noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-9959855651222635112009-07-18T17:45:14.857-07:002009-07-18T17:45:14.857-07:00C...we had SUCH a nice time on our LL date! Seriou...C...we had SUCH a nice time on our LL date! Seriously! And we needed it... Thanks for all the prayers, hon. You know they're appreciated. <br /><br />Kenly...I thought we were tight? How 'bout if I just hyper link ya every time I "borrow" your word? ;) <br /><br />Cyndi...I'm crossing fingers that that Top/Clon combo will at least help his EEG for our Detroit trip. I feel SO stressed about that...especially after his last one was such a mess. It's just so hard to know...we can't see inside...ya know. Anyway...we're definately having less seizures per cluster and they have milded up a bit too. And it's making my heart feel a little bit lighter...xoxo<br /><br />...danielleDanielle https://www.blogger.com/profile/04484341169494632974noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-32621856468772133162009-07-18T13:44:38.024-07:002009-07-18T13:44:38.024-07:00Been there and done that to ALL of what you said! ...Been there and done that to ALL of what you said! (little league games AND seizure meds!)<br /><br />So glad the levels are OK....Isn't it funny how ELATED something like that can make us? <br /><br />I wish the Topamax had helped Colby...Not only did it not lessen the seizure frequency, but it totally killed his appetite....When I tried it for migraine prevention, it DIDN'T kill MY appetite (Naturally...Need to lose some lbs!)...Didn't do anything for the migraines either...But neither Colby nor I had any other bad side effects...Except for one weird thing...My sis was also put on it for migraines...Neither of us could taste SOFT DRINKS while on it!!! Strange!!!<br /><br />Depakote was no help to us either....No reduction in sz. and sent his platelets sky high...<br /><br />As I have written before, Colby is on Clonipin now in addition to the others...That seems to be of some benefit...But like you say...Addictive...So....<br /><br />Maybe the Top./Clon. combo will be the thing that will help....<br /><br />And yes....Searching for seizure REDUCTION rather than FREEDOM is all I think we can EVER acheive in my home....But I do still have hope in a miracle!<br /><br />Play ball, Toby!!!<br /><br />CyndiColbyhttps://www.blogger.com/profile/05100340319951092104noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-87872011714486106662009-07-18T05:54:41.390-07:002009-07-18T05:54:41.390-07:00Am I gonna get a royalty on word usage? :)
Have f...Am I gonna get a royalty on word usage? :)<br /><br />Have fun at the games, and I get it...I haven't even been at this long at all and I would settle for some relief for the moment instead of freedom.blogzillyhttps://www.blogger.com/profile/08268388544631653375noreply@blogger.comtag:blogger.com,1999:blog-2600278351249979209.post-50920067296706276322009-07-18T05:32:56.666-07:002009-07-18T05:32:56.666-07:00I am so glad you get to have a date! I am so thank...I am so glad you get to have a date! I am so thankful that his levels are back to normal. I was really praying for that! have a great day<br />Love ya!<br />CBacon Wifehttps://www.blogger.com/profile/17611573988683345790noreply@blogger.com