happy being trevy

Spring and I are fighting. I've had it up to my muffed ears with this come & go thing! One day it's sweatshirt weather. The next snowsuit. And it's tricky too. Cause you can wake up to a bright glow of sunshine that warms even your bones...only to go outside and feel the bitter cold. Spring in New England. Like Saturday for instance. The sun was shining. The sky was gleaming blue. So we buckled up & headed to the park for a nice romp at the playground. Woulda been nice but for the whipping wind & frost bite on our noses! So I put out a vote. Show of hands for hot cocoa & munchkins at Dunkin? Everybody was in favor except for Toby... Who would have preferred bunking on the swing longingly watching the "big boys" playing ball. He's such a dreamer (that was mommy donated)...cause he really thought he stood a chance of being asked to play. But instead of crushing his little dreams...I simply informed him that he lost the vote & someday when ...

I feel a big weight lifted. I've noticed for a long time now the way your little legs get all tangled together. Took you forever to crawl. To the point that I was really worried. And then one day...you just did . After that it was look out world! The pulling up followed shortly...with clumsy cruising nipping on it's heels. But walking? Well...there's that pesky leg tangle again. And you do this really funny sideways thing with your footsies too. I was browsing the various Stride Rite options this week. But honestly, even my untrained eye noticed that it could be more of a problem than even fifty dollar high top shoes could fix. So at our monthly EI appointment this week I mentioned it to our OT. Now ...this is the same OT that had to be convinced you really do qualify for EI services. She even had to re-write her original eval which had you denied assistance! Soooooo ...needless to say my mental place wasn't great. I have just enough spicy Italian blood pumping th...

On the advice of a friend/fellow epilepsy mommy, I asked Dr. Neuro if we could just give you an injection of B-6 before your next EEG in a coupla weeks. Sure, no problem. I was thrilled because I haven't had success finding a compounding pharmacy. Nor have I been able to hide the yucky flavor in food. And since you've just recently started eating solids again...I just worry that you'll start rejecting food again. Last week when Dr. Neuro called to check on you I brought it up again...just to remind her because she's got a lot on her plate and can be absent-minded sometimes. It's a flaw. But, frankly, I'd rather have absent-minded than un-involved. She is VERY involved. Anyway... Turns out the pre-EEG B-6 is a no go. All this time I was thinking another thigh mark (the ghosts of ACTH are still dark spots on your chunky monkey legs). Never crossed my mind that it would have to administered via I.V.! Duh! Sheesh...sometimes I feel like I know way too much...and oth...

" You're the best mom any kid could have!" -- Toby to me after I gave permission to wear his Nick Markakis jersey to church tonight --

Sometimes I think to myself there is NO WAY I have 3 kids! And certainly not one that can read chapter books! ---- And then I look at him. So tall. So strong. So happy. So toothless. So smart. So athletic. So boy. So SEVEN ! ---- And it takes my breath away! ---- Happy 7th Birthday Tobin! ***btw you know your kid is growing up when they want to do their birthday dinner at Texas Roadhouse! It's all about the peanuts of course...and that Chuckee Cheese is right around the corner. Maybe he's not so grown up after all? :O)***

I know it wasn't my imagination! Positive! Two times I asked you for a kiss yesterday AND two times I got it! I KNOW you heard my words & understood their meaning! It was a beautiful thing! But of course, I've second guessed myself ever since. So this morning while we were playing I had the idea to give you a little bitty test. So I held up a little puppy and told you to give the doggie a kiss... ...AND... YOU DID! Twice again! Soooooo daddy grabbed the camera to catch it on video ( so all our family far away can celebrate too ) but you were being a little booger! And this little whisper kiss is all we could catch! I guess we'll leave the movie star action to your sister!

--- Bristel did great at her first visit with the dentist. Of course, sitting the princess chair...being served stickers...and magazines didn't hurt! She really just had her teeth counted anyway. No biggie. First real check up isn't until September. --- --- Toby is another story... --- so that face (above pic) shoulda served as my que. Somehow I missed the terror and was sincerely shocked when Toby literally grabbed the dentist's hands while they were snooping inside his mouth - complete with very sharp tools! A nurse & myself had to hold his hands down just so the dentist could count his teeth without cutting a hole on the interior cheek flesh... --- We did learn that Tobin has four loose teeth & zero cavities! Yeah! --- Dr. Dentist opted to not traumatize Toby (what with the freak out & four loosies) and post-poned the cleaning until September with Bristel --- --- Normally a shorter than expected doc appointment wouldn't put me in a sour place. B...