happy being trevy

Discovering ME (my epilepsy) Family Support Group invites you to a Crafters Night When : December 9th Time: 5:30pm - 8:00pm Where: Peace Dale Elementary - 109 Kersey Rd. - Peace Dale RI What: Discovering ME families have been asked to create 200 snowflake ornaments which will be used to decorate this year's Snow Angel Ball. The Snow Angel Ball is an annual event the proceeds of which are dedicated to Epilepsy Research. RSVP: By sending an email to: mszamp@cox.net

The Scene: I come running to the play room because I hear Trevy crying. He's the only one of my bugaboos that I've ever successfully been able to differentiate cries. This had a hurt ring to it. Me : What happened in here? Bristel : Well I sure didn't step on him! Ummmm ...sure you didn't! ::smile:: ************************************ Speaking of Bristel ... The Scene : Trevy's had a nasty snotty nose this week. Which explains the dried boogies covering the tip of his little snout. Bristel : (staring hard at Trevy's nose) Trevy : (oblivious) Bristel : (dramatically) I just wanna lick it! (and smacks lips) ************************** Speaking of eating... Trevy LOVES Thanksgiving num - nums ! *************************** Speaking of extras... If you haven't found the miracle of FreeCycle yet...then you must click here immediately! Just trust me. It'sa fun way to clear the clutter...or add to! *************************** Speaking of free ...how c...

I'm happy to report that this trip to Boston went much better! Although three pokes in we were starting to have our doubts. Which is exactly when Miss. IV Team arrived. She had us swaddle Trevy up tight. Switched off the lights. And held a little lamp on the back side of Trevy's hand. Which illuminated all his little veins. And their little paths. Two seconds later we were hooked up! I was very impressed. And shall from henceforth always demand IV team presence. Jonathan & I sat in the room during the MRI. Trevy ...who is a fighter if there ever was one...had to be pillowed to death because he was still sobbing in his sleep! To prevent his little hiccuping head from bobbing they had to shove pillows & blankets all round him. My little monkey. What the nurses found annoying...Jonathan & I find wonderful. Fight on Trevy ! 500 images later we were whisked off to recovery. It was obvious Trevy didn't forget he was mad. He woke up screaming. And ...

This time of year always has the sappy oozing right outta me. I adore the holidays. The shopping. The Christmas-y cartoons. The houses all a-glow. It's the one time of year that I actually like cluttering up my house with stuff. Cause it just looks so pweety. What can I say...I'm just crazy like that! But in particular I have tons of fun celebrating family traditions! And so I introduce our just implemented this year cause I stumbled onto a blog and thought it was too cute not to tweak and make it our own which is good cause I'm totally bored with the corn kernel thingie ... Thanksgiving Tree A coupla weeks in advance we (meaning mommy & kiddos) went on a nature walk. And collected fallen branches. Once at home...we placed the branches in a vase to wait until Thanksgiving Day. Cause I'm all about the build up too. On the big day after most of the feast was well under way...we (again meaning mommy & kiddos ::smile:: Daddy was on the phone with fam) traced hand...

Am I the only one feeling like I can't get everything done in a day that needs doing? Why is it that I love this time of year again? Cause seriously...I'm frazzled... It's business as usual with Trevy therapies & classes Our house (wooooow! Goosebump city just saying it out loud!) passed the Saturday inspection with just a few minor things to get taken care of. We've gotten the two thumbs up regarding our financing. Just a few more details to work through. It's quite stressful btw...ugh! And I'm SO having cold feet moments! I mean...I get nauseous buying a car for crying out loud! Our close date is set for December 18th...sooooooo could we be in by Christmas? Any takers on help with the painting?! I'm tempted to just cancel Thanksgiving! Or head to the nearest Cracker Barrel! We go to Boston tomorrow for Trevy's repeat 3T MRI. Think of us please...I'm not looking forward to this again. Although the IV team is supposed to be on hand...but I hav...

The Happy Incident Sometimes my mushy brain gets the best of me. Which is precisely what happened for Trevy's Speech Therapy this week! I booked it right smack in the middle of his nap time. So needless to say he wasn't very cooperative. Although he was groggy-happy to see Ms. Speech and all her toys. And we just went ahead and slogged through the session. Sleepies tend to bring on seizures. And at one point... Trevy did what he often does right before a cluster. He toddled over and plopped in my lap. Started smacking his lips. And picking at a toy. It's almost like he's sleep walking. A part of him is there enough to know where I am in time & space to find his way there. But another part is lost in seizure land. And his little eyes & face look vacant. Now... I know these cues like the back of my hand. To me it's all unmistakable . The lips. The missing Trevy . All of it. But the amazing (in that happy-heartbreaking sorta way) was that Ms. Speech NOTI...

And the first dose (which is 1/2 a sachet) is successfully in... So I guess... here goes nothin' Vigabatrin...