happy being trevy

Does it sound indulgent if I cop to thinking Bristel is the cutest little girl ever? Especially when she's swallowed up by my pink knitted winter hat.  So she has something to remind her of me while she's at school.  Which was her explanation for stealing it.  ******************** All on his own Toby noticed how hard I was working out and brought me a refreshing glass of water .  His words. ********************* Do you know what you're doing?! Bristel asks (in a highly suspicious tone) while observing me make dinner the other day. ******************** My nostrils are assaulted with the unmistakeably tangy scent of pickles upon entering the kitchen. There stands Tobin.  Fist full of green.  Dripping juice on the floor.  And he's grinning from ear to ear. What?  I like pickles. His answer to my unspoken question. ********************* It's anybody's guess why, but Trevy hates when I keep my hand in the water flow duri...

Three Thanksgivings ago we were admitted into our local Children's Hospital.  Trevy would be spending his very first Turkey Day inpatient.  So little.  Too little.  Our beautiful baby.  We were still reeling from the diagnosis.  Unpacking our luggage.  Because as Life would unfold...we wouldn't be catching that plane back to Tanzania in two weeks after all.  We were emotionally exhausted on all sides.  One being from battling our insurance company (I must always inject: AIG) for a week - we had finally won the $125,000 battle.  Preparations were made for Trevor to start his first course of Acthar (or ACTH) the day after.  It's a bitter sweet memory.  Bitter...because would to God we had stayed ignorant of this thing called Infantile Spasms.  Sweet because Bibi and Babu had canceled their own return to Africa flight.  And were instead surrounding us with love and support.  Along with Grams & PopPop and a whol...

Toby's was a cinch.  Although truth be told...his dad was a bit flirty with the teacher!  The teacher being me , of course.  So I didn't really mind the flirty.    ::smile::  Tobes is getting As, Bs and a C in Penmanship.  Because his mommy is a meanie!  No "but I'm a lefty" excuses for sloppy handwriting in this house!  ********** Since two outta three of his siblings are our holiday guests...we have in-home babysitters!  And I chose to take advantage of it!  Which is how I convinced Jonathan to attend Bristel's with me. Bristel is a successful student.  She tested far above average in her reading readiness skills.  Which surprised and delighted me.  See, I've been completely convinced I failed her last year.  Because...you know...much of my last year was consumed with all things seizures & brain surgery. I had very little energy left to invest in preparing her for K.  Her math and writing s...

I randomly check out the various ways people find their way to Trevy's little slice of cyberspace...  infantile spasms video  cutest puppies in the world  new pet scan PICU baby mommy blog postictal vomiting  nurse kim and toys  and my very very personal had me in hysterics favorite  mothers who lie to doctors to get their kids on medicine! 

Miss. May May sent me this email the other morning... On the way here Trevor told me a secret....momma I bite Sent from my iPhone

I love my son.  Truly.  Honestly.   I love him when he smiles.  The crooked parts are the cutest.  I love him when he slaps me. I love him when he calls my name.  A million times over.  For the very same thing.  And should I start to get annoyed I remind myself to remember the time when he couldn't.  And my love swells even deeper.    I love him when he bites.   Though I'd prefer not to be the target. I love him when I plop his cheeky butt in Time Out.   I love him when he eats.  Especially crunchy food.  He scrunches up his face in the most adorably crooked way.  And crunch...crunch...crunches.  I love him when he's driving me bonkers.  I love him when his eyes sparkle. Mischievously mostly.  Sweetly sometimes.  I love him when I'm exhausted.  And it's all his fault.   I love him when he discovers something new.  Like how to del...