Skip to main content

like God was winking

Last Thursday Trevy was still feeling a little under the weather from the *hurlie bug* that had invaded our home over the weekend.


But it was school day. And he was over the hurlie part. I thought it'd be a nice change of scenery for him.


Which school btw...is really more of a playgroup with therapists. Three other kiddos with various special needs are in his class. Trevy's the only seizure boy. During class the moms visit in a room with a big blinded window where we can keep an eye on our bugaboos.


I peeked to find a happy Trevy. Throwing a ball. Binky grinning. I'm not sure if I'll ever take his bink away. He looks way too cute grinning behind it.


But somewhere during class Trev lost that happy vibe. And started crying. But then the most amazing things happened...


He cried...


...grabbed at his coat...


::cha ching!::


...walked to the door & tried to open it...


::did you see that?!::


...and when that didn't produce the result he wanted...



...he walked over to the PECS (picture exchange) board aaaaaaand...



GRABBED THE ALL DONE CARD!!!!!!



::holy freakin' moly!!!::


I can't even express how HUGE that was to me. To his teachers. To EI Kelly...who's been with us since Trevy was just 7 months old. We were all giddy. Like we'd won the lottery or something.


::laugh::


And when I shared the happy wordy news with a church friend on Sunday. Who also knew the Dr. Boston gloomy news.


She said something that struck me in my sappy spot...


It's like God was winking at you!


Indeed. It was. I've always been a fan of the warm fuzziness of winks.
Labels:

Comments

Adesta said…
GO TREVY!!!

D...that is so great! I am so happy that he was able to express his want at that time. I pray that you can all use this as a turning point. {big hugs}
February 10, 2009 at 8:46 AM
Mama Skates said…
love the "wink" idea!!! and way 2 go trevy - LOVE IT!!! so after u all did the happy dance, did he get 2 leave? ;0)

xoxoxox,
sharon
February 10, 2009 at 8:56 AM
JSmith5780 said…
The first time PECS actually works it's amazing. And exhilirating. To know that SOMETHING is getting through to him!

So what did the teachers do? Even if class wasn't over I would really hope they let him be 'all done'... just this once so he could SEE the outcome of his request.
February 10, 2009 at 9:20 AM
Danielle said…
haha...I guess I did forget to mention that this one time they let him leave early. We all chalked it up to not feeling good. But they warned me that if he does the same thing this week...we'll have to make him push through it.

Jen...it truly WAS an amazing feeling. So powerful. I'm slowly buying into using PECS for Trev. I'm not convinced that his brain recieves speech the right way...in fact his BEAM study proved that it doesn't. Buuuut...I KNOW that he understands what he sees. And I just really think PECS beats on Trevy's strong point. Now to get over my lazy bum 'tude...and start laminating pix for him! *smile*

...danielle
February 10, 2009 at 9:32 AM
Carolyn said…
That... is... AWESOME!!!!
February 10, 2009 at 2:10 PM
Mrs. M said…
Wow!! That's so awesome!
Don't you just love witnessing that they get it? That their little minds work and are wonderful, despite all the stuff going on?! Just makes your heart happy!
"God winking..." Beautiful! I shall keep this in mind and look for the winks when in need.
So happy for you & Trevy!
February 10, 2009 at 2:24 PM
Holli said…
So amazing! The *wink* is a delightfully appropriate way of putting that! And I know how HUGE that is and how thrilled you must be to see that it's registering!

So great to hear!

Holli
February 10, 2009 at 2:33 PM
Anonymous said…
YEAH! So happy for you and Trevy. I think I'm going to ask Emma's teachers about doing this. I hope Trevy continues to make that connection. It's a beautiful thing!
February 10, 2009 at 4:11 PM
Hollis said…
Phenomenal! We've been working PECS with Hollis for years, and she HATES it! She knows how to use it, but knows it's much more effective to either do things herself or throw a tantrum. We also had the LGS thing thrown at us, but she never showed up with the right EEG, but one neuro continued to espouse she had LGS. Keep on keeping on!
February 10, 2009 at 5:18 PM
JSmith5780 said…
Do you have the PECS program? I have a ton of stuff I can send you. Email me tomorrow!
February 10, 2009 at 6:08 PM
KC's Warrior Mama said…
Woo Hoo!!!!! Way to go Trevy! So proud of you little buddy. Danielle, you sooo deserve a moment like that. You and Trevor are working so hard and it's so nice to see you both get to see something positive come out of it. Your heart needs that. Trevor you are an amazing little man!

Karen
February 10, 2009 at 7:21 PM
Melanie said…
Oh I got chills. Teary eyed. Oh, my heart just soars for you. You must have felt so in awe at that point.

Way to go Trevor. We're jumping up and down doing the happy dance for you!
February 10, 2009 at 8:07 PM
Sophie's Story by Elaine said…
That is truly amazing!!! I am so overwhelmed with joy for you and Trevy. He gets it. He really really gets it. Way to go Trevy!!!
February 11, 2009 at 7:26 AM
Post a Comment

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...
22 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...
16 comments
Read more