"This topic comes up often in our home. We live in a fairly "liberal" state...and already take advantage of a demi-nationalized health insurance. State Medicaid. Honestly...after our battle with private (AIG) insurance to cover Trevy's ACTH...it was with a huge sense of relief that we entered the world of State subsidized health care. We felt safer. More protected.
I agree Mike...every decision we make is now filtered through what Trevor's future needs may be. For example we opted to buy a house with a basement that could be converted into an apartment...in case Trevor is functional enough to live on his own. Almost. It's the same filter that drives me to push for more therapy. Therapy...that thank God is federally funded...because we don't have the means to provide that for
Trevor.
Speaking of means...or lack thereof. Trevor's diagnosis radically changed our lives. We chose to resign our post with a non-profit faith-based ministry because the medical climate in Africa is not suitable for IS babies. Resigning also meant...in our case...a dramatic cut in living expenses. I have chosen to stay at home to care for Trevy. Jonathan found a decent job. But the pay isn't much and keeps us under the poverty level. It would be nice to not have to constantly worry that his next raise will push us over the income cap for receiving State Medicaid. The worst place to be is in that middle ground. Making too much to qualify for financial assistance. But not enough to pay all those co-pays that are tied at the hip to seeing all those various specialists. We fear the middle ground. Because even though parents will do everything they can for their children. Sometimes...everything comes up short changed.
I think our kids are already getting hosed. Just from a different angle. Like pharmacuetical companies that target small market drugs. And hike the price 1300% or so. I suppose it's pick your poison. Although...I'm slightly less cynical than you...and think there are some neuros that are in it for more than the money. The really great neuros. Because even though families have more ready access to pedi neuros right now...I've heard SO many horror stories of VERY well-paid doctors not providing services to match.
But at the end of the day...I just don't know. I don't know. I wish we could treat the health care system like an etch-a-sketch...and just shake it up & start from scratch. Which is the pull I feel in my gut to do with this comment! My mind is not scientific. Not a smidge. And coming up on a problem like this...makes me go numb. Much like when I walk into the market to pick up something for dinner. Too many options shut me down. I overwhelm easy. *smile*"
For the interested - My shotgun commented thoughts regarding the cyber roundtable topic of National Health-Care at Marissa's Bunny...
Comments
My sis is also in this situation. Makes too much for State Medical, but not enough for Private Insurance. She wants to move to Canada! There's a big crack in this system and it seems to be getting wider.
I sympathize with "I just don't know. I don't know". In the end of the discussion everyone must decide for themselves how they feel about universal care. I try to give information, share my experiences, and own-up to my biases.
You are not the only one who would like to do the etch-a-sketch thing. Be sure to read the comments, if you read the posts.
Thank you for a thoughtful post on this issue. Barbara
...danielle