Skip to main content

who are we wearing purple for?

or as Mommy calls this cutie "Cool Owen"!


Lincoln's story can be found here.  If you can pull yourself away for his eyes, I mean!




Read more about sweet Sophie here


Need more Kylie cuteness?  You can find more here.
You can follow Charil's beautiful story here


Wanna watch Super Man soar? You can right here










You can find more Luke-kissy-cheek-ness right here


Click here to visit beautiful Emily's blog


Hannah doesn't have a history of IS...buuuut...her seizure disorder in many ways mirrors IS kids.  Multiple seizure types which are med resistant.  At this time Hannah's underlying epilepsy diagnosis is a mystery.  Her mom shares their journey with epilepsy here. 


Thank you to all the families who joined us today! 

We wear purple on your behalf not just today...
but every day. 

Comments

erica said…
we have some amazing kids huh? :)
Sarah said…
Oh, darn. I missed your post yesterday. We wore purple today though and will tomorrow when we go to our Epilepsy Awareness walk!
Ashley said…
I don't have any pictures, but I wore Purple for Trevy. Of course being the only female in a household of males, I was the only one who had any purple at all.
legomaster said…
Great idea Missus!
Hearts to Trevy and all those luvvie little kiddos!
oxox
Oh bummer. Our picture didn't make it up. :(

I wear purple for my little boy Lincoln.

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...