We have one more general chromosome test to do and then we get to do the Rett's test. The doctor think it's possible since she used to wring her hands together. She's stopped the wringing but does pull them to midline often.
Monica...I was wondering if you'd heard yet? We got our's back fast...altho there are some duplication/subtraction results not in yet. Dr. Genes wants to proceed with A-typical Retts...but somehow I'm okay with not moving forward for now...we'll see...
That's great!! What good news. However, I know how it's hard not to have an answer to what's going on. Hopefully everything will be outgrown and overcome :)
Andi...it's one of those things that you hate to want to know. But I'm glad we went ahead with the testing...I'm not sure if we'll proceed from here. I fluctuate between wanting to over turn every single rock in the the search for Trevor's IS...the other part just wants to close my eyes & keep living. Just depends on the day...
8 comments:
So glad to hear that!! We still haven't heard anything yet on ours. Today marks 4 weeks. Hopefully we'll have good news too.
whoo hoo! xoxoxo love! have a great weekend!
Yeah!
We have one more general chromosome test to do and then we get to do the Rett's test. The doctor think it's possible since she used to wring her hands together. She's stopped the wringing but does pull them to midline often.
So glad to hear that test was negative!!!!
Monica...I was wondering if you'd heard yet? We got our's back fast...altho there are some duplication/subtraction results not in yet. Dr. Genes wants to proceed with A-typical Retts...but somehow I'm okay with not moving forward for now...we'll see...
Thinking of you while you wait!
Sharon...you too sweets!
...danielle
That's great!! What good news. However, I know how it's hard not to have an answer to what's going on. Hopefully everything will be outgrown and overcome :)
Have a wonderful weekend!
Andi...it's one of those things that you hate to want to know. But I'm glad we went ahead with the testing...I'm not sure if we'll proceed from here. I fluctuate between wanting to over turn every single rock in the the search for Trevor's IS...the other part just wants to close my eyes & keep living. Just depends on the day...
Shanna...thanks sweetie! And ditto!
...danielle
Woo Hoo!!!
What a wonderful treat to have such good news! Congrats and enjoy your sunny weekend.
Congrats, congrats, congrats!!!
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