Trevy's Journey

If you suspect your child is having seizure events I cannot emphasize enough the power of a video clip. Also, bear in mind that the intensity you're experiencing in person is at least ten times more intense than can be captured on a video clip. I say this because Trevor's seizures may seem quite mild in some of these clips; they are not. 

Trevor's Seizure Videos

Our very first clip which helped our pediatrician tentatively diagnose him. He was 7 months old. 



After approximately 8 months of seizure freedom, we began noticing these very subtle head tics. Though very mild, an EEG confirmed his IS had relapsed.



Complex partial seizures are very easy to miss as the cues can be as subtle as lip smacking.


Medications, meant to help, can actually alter the intensity and presentation of seizures. His seizures were much more intense while we trialed Sabril.




This video, along with other testing, helped the surgical team towards a decision as his right side is visibly more involved than his left.




I could not embed this clip, but he is 10 years old and after 8 years of relative seizure freedom post hemispherectomy he is again having daily seizures. Most of them appear similar to the one in this clip.


In the video below we catch the end of one of Trevor's longer complex partials. Thankfully this seizure was only two minutes long. Often these last right to the cusp of needing to administer rescue meds. When he relapsed last year he only had right sided tonic seizures like the video above. We're still seeing daily tonics, but we're also watching them change into these longer, more intense seizures. Intense because he is no longer partially aware. He is completely non-responsive for the first 10 seconds of the video. Around the 10 second mark you'll notice his head drop slightly and it's almost like you can visually see him "come back". However his speech is still slurred and he is unable to control simple body functions, like smelling with his nose. 

 

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