10.14.2009

dealing with junk

Trevy had an amazing day yesterday!







The cherry on top was playing "punch daddy in the nose" and hearing him laugh! And smile his new crooked smile. Cause even his right sided face muscles will need to relearn how to work. I've always been sucker for crooked smiles anyway.







Just as Jonathan and I were heading to bed (Bibi was taking the overnight shift) his IV popped out. It was going to come out eventually anyway. The trouble is...the puking. He'd made it all day without losing his lunch. And had eaten plenty. But...my worry was now he'd have to be taking all meds by mouth. Meds are just not the same as teddy grahams. In the holding it down depot.







Turns out I was right.







Bibi reported that he'd thrown up all night long. Poor baby.







The neuro-surge doc on the floor said we'll try to give him oral Zofran (to settle his tummy) and hope that it works so we don't have to put in a new IV. I hate IVs. Trevy hates IVs. The people who try to stick him hate IVS...on him. It would just be so wonderful if he could hold down the tummy meds. And they worked!







Especially because in every other way...we're ready to go home. Jonathan was all ready to go reorganize the car. Getting ready for departure.







We want to go home!







UGH!







Buuuuuut...







as frustrating as this junk is. Trevy...who we just spent the last ten minutes comforting through a wretched round of the dry heaves...







is in his bed. Humming to himself! And clapping!







That is SO flippin' huge! It's not a smooth clap or anything. But it's a clap!



And that helps when dealing with junk...

11 comments:

Sinead said...

Will you stop making me cry with the awesomeness of it all. He is doing so well. The facial weakness will get better. For a while I put all of Emmas food and toys on her weak side and she very quickly got it involved again. Now obviously Emmas surgery was very different and not as complex so recovery might be a bit more intense.

OK resume transmission - make me cry more.

Lisa said...

This is so great! Except for the puking of course...but seeing them come out of that fog...there's nothing like it! And it just gets better and better. Julia had the lopsided face for just a little while, that goes away quickly. Praying for the puking to stop so you can escape the hospital. Heading out those doors to go home...there's no better feeling.

Anonymous said...

Just remember if you get home before Saturday Toby won't go to Buffalo.

JSmith5780 said...

Oh yeah! I hope he continues to rebound today and you can get the heck out of there! And remember, if you travel north, we're on the way... we even have a spare bedroom. ;)

Holli said...

So, the spewing sucks...hoping his little tummy settles soon.

But the clapping and playfulness is awesome! Getting closer and closer to the road home!

Anonymous said...

I hope the puking stops soon. I love the crooked smiles:-) I was worried that it was permanent, but everyone assured me it would go away, and it did. I hope you get to go home soon. You will all feel much better at home.

Erin M.

Sophie's Story by Elaine said...

You might want to ask about also putting him on Prevacid. Sophie was on Zofran but she was still vomiting so they added Prevacid. I don't think she was nauseaus anymore because she wanted to eat but it would just come back up. The Prevacid helped settle the acid in her stomach and esophogus from all the vomiting.

~Mama Skates~ said...

hey, i've taken Zofran - pesky chemo! ;0)

yay for the humming & clapping & poo & crooked smile...loving these updates girl!

hope u get 2 go home soon...as long as u keep the updates coming once u're there! ;0)

therextras said...
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therextras said...
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Colby said...

I can only imagine how frustrating this tummy thing is....But I am sure they will get to the bottom of it and there will be a simple explanation, like a change in Rx, as others have said...

The clapping?

YAY!!!!!!!!!!!!!!

I'M CLAPPING NOW!!!!!!!!

And since clapping is one of Colby's favorite things to do, I will make sure he give a BIG round of applause to Trevor when he wakes up in the AM!!!!

Cyndi...