happy being trevy

    15     That’s the number of episodes he’s had since September.     The first two times it happened we just assumed it was a tummy bug.  I mean kids throw up all the time.  Yeah, it was weird that he only spilled once.  And also that he never had a fever or any other tummy buggy symptoms.  But not everything is a zebra , you know.     Or at least that’s what I told myself for months.     Stop reading into this has been my on going inner heart-alogue.     Then around December…I could feel the worry rising inside.     I mean, healthy people don’t vomit out of the blue a couple times a month.  He had several episodes that were particularly scary.  There was that Sunday when Miss. Kerrie, who has been our church helper for years now, wanted me to take him home with her because the episode he had was that intense.  She was worried enough to warrant mom being the...

    Which is not to imply that we haven’t been serious to this point, mind you.     Because we have been.     For three bloody years we have been.     Once an hour (because a schedule seems to work best for him) for three bloody years we have been potty serious.     Every gimmick, trick, theory, Elmo potty toy/book/dvd, potty training program tried once an hour for three bloody years kinda potty serious.     And it’s not that he’s entirely unsuccessful.  Although he has yet to TELL me (consistently) when he has to use the potty. But still, we’ve had stretches when I’ve actually thought we were ready to brave the big boy undies in public!  Then suddenly…we’re back to ground zero.     And it’s been frustrating.     And exhausting.     And all consuming.     And (because the tears I’ve shed over this skill are many, it bears repeating) SO thoroughly exh...

    Praying with Trevy has always been part of our nightly routine.     Except when sick, Trevy is a sweet, sappy, cuddle bug at bedtime.  Even when dripping with exhaustion, there is something really special about snuggling up, reading a book, singing a song and praying.  No matter how cranky I am, it always gets me in the heart.  It’s one of the most peaceful moments in my day.    I do naps and Daddy does night nights.      Now that Trevy is understanding so much…     I’ve had this heart tug to make prayer time mean more for him.      Once upon a time, I’d read a sweet post that shared a prayer over their children. Moving from head down to toes. It included words like “heart of a warrior – feet that run to Jesus”.   I thought I’d read it over at Sand in the Gears …one of my favorite reads which I’m shamelessly plugging. In fact, I emailed the author so convinced was I. Tony ...

    Trevor has had very little time totally seizure free post surgery.     Which does NOT mean the surgery is a failure.  Or that we have any regrets.     In fact, that couldn’t be further from the truth!!!!  The surgery has helped us control his seizures more effectively and has given him a chance to make developmental progress!  I have NO doubt that I never would have heard his sweet voice meaningfully say words if we hadn’t gone the greatest lengths to rescue him from the Seizure Monster.  And he’s learning to say some very sweet (and sometimes not so sweet) words!     I can hear him through the school room door.  His ABA therapist is running a social questions lesson and she asked him who his mommy is.     Den-elle , he said.     I wuv you, Den-elle …he repeated.     Sweet sweet words!!!!      But.         We’re in a seizure c...