I have often felt a guilty pang sharing the happy moments. Because of Trevor’s medical challenges I am very sensitive to those that are living some of the darkest moments of their lives right.this.very.moment. I never want anyone to feel like I’m rubbing our “happy” in. If that makes sense. It also drives me bonkers that people see a snap-shot in time and so easily believe it represents the whole. Trevor has many, many happy moments. I cherish them deeply. He has taught me how to appreciate glimpses of beauty in a way that would never have been possible without him. But our happy is always mingled with tragedy. Brokenness. In so many of those happy moments we see glimpses of the boy he could have been… and our hearts smile-grieve. And long deeply for the day when Healing washes over him…and us all. Snapshots… c...
Our family's journey with catastrophic epilepsy, homeschooling, and unconditional love.