happy being trevy

It's like a switch tripped. He has been a complete and total joy since he woke from his very extended nap yesterday. This is good news, mingled with yuck. It's a signal to me that yesterday's moodiness (and sleepiness) was pointing towards subclinical seizure activity. As his neuro likes to say, "cranky kid - cranky brain". Ugh.  On the upside, though, the sentence he just blurted to Miss ABA totally melted me in his beautiful syntax and lots of words-ness...  Guess what?! Yesterday I eat too much pepperoni and me got sick!  Look at all those words in a row! Look at that nearly perfect grammar structure!  This boy.

I like to share the heart warming anecdotes from our life with Trevy. It helps me remember that not every moment is heavy and heart wrenching. Particularly when we smash into the angst times. Like now. After his larger (most likely) complex partial Friday night my whole body (centralized in my heart) has been coiled tense. Epilepsy is a thief, stealing away bits of him (of us) all the time. Development. Health. Peace. Breath... Because it's impossible to breathe normally when his life is unstable. Which is precisely how it feels right now. Unstable. Combustible. Treacherous. Volatile. I witnessed two very quick myos over the weekend. Hardly worth noticing, really. Except that...well...they're seizures. And every seizure is a serious seizure. Even the innocent appearing. Actually, it's a soapbox of mine. The attempt to down play one seizure type over another. It's not a competition. Let's just settle this right now. There is NO such thing as a g...