I love sharing the happy moments we have with Trevy. Living beside him and teaching him fills my heart with a rich, deep joy. A joy that is intangible and therefore indescribable. A joy that is directly related to my understanding of his diagnosis and how it effects him. It is truly a gift to parent a child who is considered a miracle. I know my "sisterhood" understands this. It's why the littlest (on the surface) accomplishments bring tears to our eyes. But I fear that sometimes I unintentionally make it sound like he is thriving beyond reality. I've had many people assume he's "normal" or accuse me of being overly pessimistic regarding his future. Let me pause and say, his future is unknown. I get that. I also know, much deeper than anyone outside our immediate family, how astoundingly far he's come. But make no mistake, epilepsy and the treatments we've had to pursue have left their mark on him. On his body. On his brain. On h...
Our family's journey with catastrophic epilepsy, homeschooling, and unconditional love.