About three months ago we began seeing seizures again. These were clearly a new type (tonic, with some clonic pulsing at the end of larger events) and I immediately reached out to our neurologist. Unfortunately, after seven plus years of relative seizure freedom, it appears that Trevor has relapsed and his epilepsy is no longer responding to medications. We've always known this could happen, but after seven years one begins to hope. As you can imagine, our hearts are heavy and our options impossible. We have a lot of testing and talking and soul searching and praying to do over the coming months. In the meantime, we persevere. One of the greatest concerns I have as his mom and educator is loss of skills. Seizures and the medications used to treat them are not notorious for flourishing cognitive growth. Indeed, we have been struggling of late. His focus and attention have regressed dramatically. It seems he's lost some math facts and sight words he once knew solidly. I t...
Our family's journey with catastrophic epilepsy, homeschooling, and unconditional love.