Skip to main content

hospital day

Monday 11/19/2007

I cried as you were being admitted. I felt like if they just didn't put that little wrist band on then maybe we were just dreaming. Maybe it was all in my head. But it wasn't. And that was such a crazy day. We got upstairs and I fought tooth & nail to have an MRI done before we started treatment. I just needed to have another confirmation that ACTH was the right thing for you. I was scared. In the middle of everything the doctor decided to give you a TB test - since your mommy & daddy live crazy lives as missionaries in Tanzania. That would give me my wish since they had to wait 48 hours to read it!

Daddy stayed with you in the hospital that night. I slept at the Ronald McDonald House. Gosh, I never thought I'd be there! The R-House is a great resource - but for other people - not people like us! I slept with my Bible - I can't remember the last time that happened. I've been reading Psalms 139 to you everyday.

Tuesday 11/20/2007

You finally got your MRI - although the machine crashed in the middle of it. Daddy & I watched Oprah's favorite things in the waiting room - I love that show. It made me happy to see other people getting blessed. We love you sweetie. And we want to be blessed with more than fridges w/tvs in the front. We want a healthy baby boy.

We were discharged that night and asked to return Thursday. Thanksgiving. To start treatment.
Labels:

Comments

Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

it ain't sexy livin' on an island...

Especially when you have to cross bridges to get ANYWHERE. Very LARGE bridges. The crests of which I inevitably get stuck at. Speaking of...why is it that at the tippity tops of our bridges...the railings always open up? To reveal an eagle's eye view of the white capped depths below? I HATE that. And sure enough...in route to Dr. Pedi yesterday...they must have seen me coming cause traffic ground to a halt at the top of the Mt. Hope Bridge. Where I felt less than Hope-ish. My palms gushing my nerves onto the steering wheel for a good 15 (felt like forever) minutes. Not just things medical bring out my cowardly lion. Heights do too! Anyway... Grabbed an iced coffee and chocolate cream filled to settle my nerves on the way. And we arrived on time...in one piece. Of course. Dr. Sick-Visit-Pedi breezed in chart in hand. Glanced down. Then at Trevy. Then said... "He has a history of Infantile Spasms?" Surprise and speculation in her voice. We get that a lot. It...
13 comments
Read more