11.26.2007

sticker shock

Thursday 11/23/2007

Your first Thanksgiving was spent in the hospital. We felt so calm this time during the admitting process. It was strange. I still hate the thought of being in the hospital. And I hate that we have to give you the shots. I wish there were another way. But right now this is it, honey. Your daddy says it's more the holding $5,000 in one needle than the actually pricking your leg! But he's been so strong for me - for you. He thinks if you were big enough to make up your own mind that you would chose ACTH too - side effects shmide effects. That it's worth the risk at a chance for a normal life. But no matter what path God chooses for you, we love you. Fiercely.

Friday 11/24/2007

Daddy gave you your shot for the first time today. I had to leave - but then I was torn up with guilt. I left because I didn't want to make daddy nervous. And I couldn't bear to hear you cry.
The nurses had to take blood from a vein in your head! Barbaric! But you're so strong & forgiving! You stopped crying the minute I cuddled you! It helps that I know you know we love you.
Toby & Bristel want to see you but the nurses won't let them - they're afraid you'll get sick. But they love you too, Trevor.

Saturday 11/25/2007

You were so happy to finally be home again! I think you feel safest here. Your smile certainly says that!

3 comments:

Jarret said...

I can't imagine what you are going through, but you know we love you and pray for Trevor a lot...he's a special guy.

Jarret said...

I didn't know you guys had this blog. You are doing a great job Danielle. I feel so connected by having read it. I wish I was there instead though. I love each of you and am praying for my sweet nephew.
Love,
Jenn

baby trevor's mommy said...

Thanks for the love guys! We wish we could be together too... soon enough i guess