To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
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Jenn
He has an EEG next week - we're anxious to see if his little brain is still having "high voltage" activity.
We're just hugging & kissing him a lot these days. And are trying not to worry too much - right! :)
Love you guys...danielle