- Christmas Eve - spent in the ER because you had a really high fever. Note to you btw - you're lucky you're so cute cause that was NOT!
- Christmas Day - your sister was super sick. The hospital called - your strep test came back positive. You & daddy hauled it to the ER. Again.
- The day after Christmas - we gave you your last injection of ACTH! Hip hip hooray!
- You finally found your crawl groove. Just when I was starting to let my drama queen persona take over too!
- You started saying "mama". It's been over a month since I've heard those sweet words spill from those even sweeter lips!
- You laughed while we were playing catch. It was the first time ever! Divine!
- I only cried a couple-ah times. Couple-ah dozen that is.
- You looked really cutsie in your Christmas clothes.
- Bristel has claimed all your new toys. Along with her own.
- Your face shows how you feel about Toby. Over the moon!
- I told you I loved you last night. And that afternoon. And that morning. And the night before that. And the....
- My New Year's wish is that your seizures will remain in remission. That you'll continue to thrive. That you'll always be happy! And that you'll know w/o a doubt just how much we all love you!
To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
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