It feels like we've lived a thousand years this past month. The unfortunate thing is - I think my face agrees! Ugh!
Anyway...
Today we're hoping to get the "all clear" for you to go out into the germy world again!
Dr. H waved her magic wand and "ta da" we're going for your MRI tomorrow! I'm happy. I think? My heart is desperate to know the results. But afraid of what it might all mean...or that they won't see the lesion which would equal "Boston here we come". For a PET scan. And more stinkin' waiting!
Then you're being admitted on the 16th for a 48 hour VEEG. They need to watch your little brain waves on that machine that gives us a migraine - and note the odds & normals. I have no idea how we're going to manage that one! Keeping you electrode"ed" - and playing quietly - for 48 HOURS! Don't they know you just learned to crawl!? Sheesh...
Then we wrap it all up & tie it with a bow by a meeting with Dr. H on the 28th...which will hopefully give us some of those elusive answers we're craving. God, please let her have some answers!
Our life has changed so much these past few weeks. I've (we've) lived through some crazy - bizarre - scary moments...and it's all leading up to what? We don't know. We just don't know. The hardest part is the not knowing...
But I do know that we have a lot of people out in this great big world loving us - lifting us - and it helps! It brings comfort.
So thank you to all the family & friends that are following & praying & believing alongside us...
3 comments:
Good luck with the MRI. See if they can tell you where it's located...sppech center, etc. that should give you an diea on what developmental challenges he *may* have.
As for the EEG. In Boston they would give us gym mats for the floor so that Austin had more room to play.
sorry, my typing stinks :)
LOL Jen :O)
The MRI went okay..altho no word from the doctor yet. Which ordinarily would be a good thing...buuuut...well you know.
I had myself freakin' out about the EEG - the room we typically use is very *yuck* for lack of a better word. I thought we'd be stuck in there for 48 hours of sheer bliss - but turns out we'll be in a mointering *suite* - complete w/rocking chair, pull out bed & a play mat if I ask! Whoo hoo! Much easier to wrap my mind around that!
Here's to a sweet-sleep filled night! :O)
...danielle
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