On the advice of Trevor's OT we were set up with a Physical Therapist evaluation this past Tuesday.
And it didn't take the seasoned (she's been doing this for a looooong time) eyes of Trevor's newest specialist to notice...
there is a definate neurological delay on his right side.
Which makes sense. All the sub-clincal activity is bouncing around his left hemisphere.
It all makes sense.
How hard he has to concentrate to clap. And then sometimes misses. How he favors his left hand. How he drags his right leg behind when he's crawling. How he'll be crusing along when suddenly it looks like his right leg just gives out and he tumbles to the ground or whacks his head on the door-jam. The way he always looks just this side of tipping over while free-walking!
And it didn't take the seasoned (she's been doing this for a looooong time) eyes of Trevor's newest specialist to notice...
there is a definate neurological delay on his right side.
Which makes sense. All the sub-clincal activity is bouncing around his left hemisphere.
It all makes sense.
How hard he has to concentrate to clap. And then sometimes misses. How he favors his left hand. How he drags his right leg behind when he's crawling. How he'll be crusing along when suddenly it looks like his right leg just gives out and he tumbles to the ground or whacks his head on the door-jam. The way he always looks just this side of tipping over while free-walking!
And she pointed out his zombie walk. His right leg stays straight & stiff. And his little foot makes a slappy noise when it connects with the floor. And even though he walks with a limp...he still is able to walk a few steps in a row! Quite cute really!
She even showed me how he's figured out to grip the floor with his toes for balance. Clever little monkey!
And of course I started blubbering like a fool. It was the first time I've done that in front of *professionals*. I apologized and blamed it on something altogether else. Of course, she didn't believe me...and she was very uncomfortable! *smile*
It wasn't that I was suprized. Or shocked. Or overwhelmed. I mean, I've noticed some of these things myself! And in light of how well he's doing...this really isn't a big deal. Honest!
It was just the hearing it out loud. The sadness of knowing how much harder he had to fight to get his little body to work together. And the wondering what else is being affected...that isn't so obvious...
But then I looked at him. With those big blue *nothin's gonna stop me* eyes. All zombie like...and cute.
And it struck me. His tenacity.
He's my floor-grippin-with-my-toes-cause-my-feet-don't-work-right baby! And if he can be tenacious.
So can I!
Comments
but i TOTALLY know where u're coming from....i've boo-hoo'd in the doc's office for no "real" reason, but just because someone else is finally confirming what my suspicions were....and that "maybe it's not what i'm thinking" thought is wiped from the table...it's now a confirmed, hard fact
kudos to u for loving EVERYTHING about trevy & his disabilities...they make him who he is....and y would anyone want to change that?! that which does not kill us, makes us stronger....and u know u've got one tough lil cookie right there!!! ;0)
xoxox,
sharon
Jeff and Allison
LOVE YOU! I knew we'd have a heart connect the first time I laid eyes on.....
YOUR CAKES!
lol...
Seriously tho...xoxoxo
J & A
thanks...and ditto
I hope the Epilepsy Found can help out with costs!
...danielle
My niece is the same way. She was born at 26 weeks gestation and weighed a little over a pound. It was touch and go for the first year of her life, but that little girl is a fighter! She has mild CP, she drags her foot a little, but other than that totally fine!
I know Trev will be able overcome any developmental or physical obsticle. He has a good family and wonderful parents like you behind him 110%.
I totally know what you mean about everything just hitting you like a ton of bricks and you just have to cry and get it out. Then you pick up and go on. We all need those times. You just have to let off some of that excess steam to regulate the pressure. It gives us the strengh to pick up and go on.
Just know you have friends here to pick you up when you are feeling down.
It is my deepest hope that your pain will be lifted! And that in the meantime you'll be surrounded by family & friends to support you through. And I continue to pray for you & your beautiful baby girl!
...danielle
...danielle
((((hugs))))
Our neuro has a tendancy towards speaking her gut...which can be good & bad *grin* But in a way...I appreciate her honesty...probably because I know how much she cares for Trevor. I think that makes a difference, ya know?
Anyway...
Sophie is beautiful! Your whole family is!
Thanks...danielle