Skip to main content

The BEAM

It's like a super EEG

That's what Dr. Neuro said. She didn't do it justice. ::smile::

There were more electrodes. Heavy duty glue to hold them in place. Data was recorded in a multitude of stimuli. Or is it stumulus? Darkness. Brightness. Flashing light-ness. Creepy twilight zone noises were funnelled through head-phones.

Among the most promising things this study can reveal will be if Trevor's brain deciphers a difference between noise & language. That'll be huge for us to know...cause right now nobody is quite certain. He likes to play his cards close!

Anyway...here's a video of Trevor listening to the twilight zone music. Unbelievably...we caught a smile too! His courage melts me!





Labels

Labels:

Comments

Shanna Grimes said…
What a brave little guy! Glad things went well. Hopefully it will reveal what's going on upstairs. When will you find out the results?

BTW...We're back at home! YAY! Going to catch up on all your posts today. Good to be home. We missed you.
June 21, 2008 at 7:15 AM
Sophie's Story by Elaine said…
Wow...sounds more like a psychedelic EEG. How did you get him to keep the headphones on?!?!
June 21, 2008 at 10:23 AM
Danielle said…
Shanna - yeah...you're home! We should get the results within the next week. Although I'm calling the doctor on Monday...cause his ST is Tuesday & it'd be really interesting to know if we need to lower the bar or set it higher! :O)

Elaine - I KNOW...Jonathan & I were really creeped out by the noises. And we didn't know that you could hear the sounds on the vid clip until we uploaded it. The head-phones & noises never even bothered Trev. Even the tech was suprized. But Trevor is such an sweet heart...and except for the placing the electrodes...he was okay as long as he could see me! :O)

...danielle
June 22, 2008 at 3:13 AM
JSmith5780 said…
Hope you are better today. Email me or call me. Did you enjoy your family visit?
June 23, 2008 at 7:47 AM
Mama Skates said…
what a sweet face! hope u get speedy results!
July 1, 2008 at 10:19 AM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I was talking about you today

That's right. You. Sitting there glued. To the computer screen. Getting your Trevy fix. You who hasn't been able to tear your eyes away. The one who checks back here gobs of times a day. Hanging on every post. Especially the dripping with drama or funny posts. Because you need to either laugh or cry alternately. Just like me. And somewhere...sometime...somehow...over the course of these past couple years... ...you found yourself here. Reading about me. About my family. About my Trevy. And slowly you were drawn in. Until you couldn't help yourself. You were head over heels. Unashamedly addicted. Maybe we connected in a support forum. Perhaps we're old college friends. I know we have family following. Hi guys! Some teachers and therapists. Maybe even a medical professional or two. Perhaps our kids play ball together. We might be FaceBook friends. Or you could be a friend of a friend. Even a complete stranger. But to us... you each have a very special pla...
16 comments
Read more

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.
15 comments
Read more