Skip to main content

The BEAM

It's like a super EEG

That's what Dr. Neuro said. She didn't do it justice. ::smile::

There were more electrodes. Heavy duty glue to hold them in place. Data was recorded in a multitude of stimuli. Or is it stumulus? Darkness. Brightness. Flashing light-ness. Creepy twilight zone noises were funnelled through head-phones.

Among the most promising things this study can reveal will be if Trevor's brain deciphers a difference between noise & language. That'll be huge for us to know...cause right now nobody is quite certain. He likes to play his cards close!

Anyway...here's a video of Trevor listening to the twilight zone music. Unbelievably...we caught a smile too! His courage melts me!





Labels:

Comments

Shanna Grimes said…
What a brave little guy! Glad things went well. Hopefully it will reveal what's going on upstairs. When will you find out the results?

BTW...We're back at home! YAY! Going to catch up on all your posts today. Good to be home. We missed you.
June 21, 2008 at 7:15 AM
Sophie's Story by Elaine said…
Wow...sounds more like a psychedelic EEG. How did you get him to keep the headphones on?!?!
June 21, 2008 at 10:23 AM
Danielle said…
Shanna - yeah...you're home! We should get the results within the next week. Although I'm calling the doctor on Monday...cause his ST is Tuesday & it'd be really interesting to know if we need to lower the bar or set it higher! :O)

Elaine - I KNOW...Jonathan & I were really creeped out by the noises. And we didn't know that you could hear the sounds on the vid clip until we uploaded it. The head-phones & noises never even bothered Trev. Even the tech was suprized. But Trevor is such an sweet heart...and except for the placing the electrodes...he was okay as long as he could see me! :O)

...danielle
June 22, 2008 at 3:13 AM
JSmith5780 said…
Hope you are better today. Email me or call me. Did you enjoy your family visit?
June 23, 2008 at 7:47 AM
Mama Skates said…
what a sweet face! hope u get speedy results!
July 1, 2008 at 10:19 AM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more