Skip to main content

tea party anyone?

So...here it is. B.E.A.M. day. For so long it's been looming...now it's just one more sunset away!


I'm not exactly sure why I have butterflies in my tummy? But there they are...tumbling around making me nauseous. Feel free to analyze!

::smile::

I think I already mentioned that Dr. Neuro also referred us for a 2nd opinion with her mentor - from Boston Children's. He not only agreed...but freed up a slot just for Trev! How great is that?! Plus...we have a whole hour & a half. Just him. Us. And Trevor's chubby charts. My heart is really hoping he'll have some advice or ideas outside of what we already know?


We were tossing around the idea of taking the big kids with...and making it a family day. There are lots of cool things to do in the big B. Buuuuut...with it being such a long day & Pop-pop on the mend...Grams offered to keep them for us instead. (Jen...I'll pick your brain next time!) Have I mentioned that I love my mom! Couldn't do this without her? Surely not enough...


Soooo...now we wait. Til' tomorrow.

Comments

Anonymous said…
I love you, too. Thank you for blessing me with such wonderful grandchildren. I am the most blessed Grams in the whole world.
June 18, 2008 at 6:10 PM
Sophie's Story by Elaine said…
I had one of those "butterflies in my tummy" day today too. Ugh...I hate those days. So glad it's over. Good luck with the B.E.A.M. study tomorrow. I'll be thinking about you all.
June 18, 2008 at 8:58 PM
JSmith5780 said…
Wish I had seen this last night. I hope the BEAM goes well. It's really an easy test. You sit ina little box and they have all sorts of sensory stuff around you. They will want Trev to sleep for part of it and then wake him with strobes. The strobes are obnoxious, but necessary.

Well this is all for naught since you'll be back by the time you see it. Hope it goes well. I'll be anxious to hear all about it when you get back. Remind me are you seeing Dr B or Dr T? I truly can't remember. Oh wait maybe you said Dr D? He's the one I don't know.

Anyway, hope it was a good day! Did Tev like the ball machine in the lobby?? I have a hard time getting Austin away from it!
June 19, 2008 at 5:08 AM
Mama Skates said…
good luck with everything! praying for u this way!!!
June 19, 2008 at 8:33 AM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I was talking about you today

That's right. You. Sitting there glued. To the computer screen. Getting your Trevy fix. You who hasn't been able to tear your eyes away. The one who checks back here gobs of times a day. Hanging on every post. Especially the dripping with drama or funny posts. Because you need to either laugh or cry alternately. Just like me. And somewhere...sometime...somehow...over the course of these past couple years... ...you found yourself here. Reading about me. About my family. About my Trevy. And slowly you were drawn in. Until you couldn't help yourself. You were head over heels. Unashamedly addicted. Maybe we connected in a support forum. Perhaps we're old college friends. I know we have family following. Hi guys! Some teachers and therapists. Maybe even a medical professional or two. Perhaps our kids play ball together. We might be FaceBook friends. Or you could be a friend of a friend. Even a complete stranger. But to us... you each have a very special pla...
16 comments
Read more

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.
15 comments
Read more