So...here it is. B.E.A.M. day. For so long it's been looming...now it's just one more sunset away!
I'm not exactly sure why I have butterflies in my tummy? But there they are...tumbling around making me nauseous. Feel free to analyze!
::smile::
I think I already mentioned that Dr. Neuro also referred us for a 2nd opinion with her mentor - from Boston Children's. He not only agreed...but freed up a slot just for Trev! How great is that?! Plus...we have a whole hour & a half. Just him. Us. And Trevor's chubby charts. My heart is really hoping he'll have some advice or ideas outside of what we already know?
We were tossing around the idea of taking the big kids with...and making it a family day. There are lots of cool things to do in the big B. Buuuuut...with it being such a long day & Pop-pop on the mend...Grams offered to keep them for us instead. (Jen...I'll pick your brain next time!) Have I mentioned that I love my mom! Couldn't do this without her? Surely not enough...
Soooo...now we wait. Til' tomorrow.
I'm not exactly sure why I have butterflies in my tummy? But there they are...tumbling around making me nauseous. Feel free to analyze!
::smile::
I think I already mentioned that Dr. Neuro also referred us for a 2nd opinion with her mentor - from Boston Children's. He not only agreed...but freed up a slot just for Trev! How great is that?! Plus...we have a whole hour & a half. Just him. Us. And Trevor's chubby charts. My heart is really hoping he'll have some advice or ideas outside of what we already know?
We were tossing around the idea of taking the big kids with...and making it a family day. There are lots of cool things to do in the big B. Buuuuut...with it being such a long day & Pop-pop on the mend...Grams offered to keep them for us instead. (Jen...I'll pick your brain next time!) Have I mentioned that I love my mom! Couldn't do this without her? Surely not enough...
Soooo...now we wait. Til' tomorrow.
4 comments:
I love you, too. Thank you for blessing me with such wonderful grandchildren. I am the most blessed Grams in the whole world.
I had one of those "butterflies in my tummy" day today too. Ugh...I hate those days. So glad it's over. Good luck with the B.E.A.M. study tomorrow. I'll be thinking about you all.
Wish I had seen this last night. I hope the BEAM goes well. It's really an easy test. You sit ina little box and they have all sorts of sensory stuff around you. They will want Trev to sleep for part of it and then wake him with strobes. The strobes are obnoxious, but necessary.
Well this is all for naught since you'll be back by the time you see it. Hope it goes well. I'll be anxious to hear all about it when you get back. Remind me are you seeing Dr B or Dr T? I truly can't remember. Oh wait maybe you said Dr D? He's the one I don't know.
Anyway, hope it was a good day! Did Tev like the ball machine in the lobby?? I have a hard time getting Austin away from it!
good luck with everything! praying for u this way!!!
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