Skip to main content

on friendship

Without a doubt...much of my sanity since Trevor's diagnosis is founded in the friendships forged from togetherness in this sometimes tragic & scary & even miraculous & happy IS walk.


This...is one of those friends!


She has supported me (virtually...we've never actually met...although I was drawn to her immediately after reading her IS journey & feeling her passion for advocating for these beautiful babies) through many interesting twists & turns that have come along these past few months. If I'm ever published...she very well may be my chief editor!


I've appreciated every bit...but especially the support I found on her blog today...


Take a minute to support me...by supporting her.


And then...perhaps even writing a letter of your own! After all it's that get involved in politics time of year...


::smile::

Labels

Labels:

Comments

Anonymous said…
Good luck tomorrow! We'll be cheering you on from the cyber world:-) Hope you have recovered from your train ordeal.

Erin
July 23, 2008 at 8:27 AM
Danielle said…
We're good...tired but good. I hope we can make up with early to bed tonight!

Thanks..

...danielle
July 23, 2008 at 3:45 PM
JSmith5780 said…
You stink... you made me cry! And I have had a really yucky day (thats for another day)!

I am so excited (and nervous) for you tomorrow! Can't wait to hear from you!!
July 23, 2008 at 6:55 PM
Sophie's Story by Elaine said…
On Monday, I went on the website that Mike had sent out on the IS Yahoo group and saw your name listed. Very official. I immediately sent an e-mail to my senator requesting her to attend with a brief bio of Sophie. I am really proud of you and Jen for pouring so much of your heart and time into this. You both represent us all very well. It inspires me to do more. Good luck tomorrow. I will be thinking about you.
July 23, 2008 at 9:43 PM
Shanna Grimes said…
Good luck tomorrow (today where you are). You're in my prayers! I read the article about you on Jen's blog to my mom. It was neat to see your name and Trevy's name. You are famous! You go girl!! Hope you and J have a productive trip. Sending you virtual love and support XOXO.
July 23, 2008 at 10:55 PM
Danielle said…
((((hugs to all of you)))))

...danielle
July 24, 2008 at 3:48 AM
Anonymous said…
((( Trevor's mom and family )))) I know you will do a great job in DC and you are in my prayers. I will be in touch again soon.

Much love from the Dawg :@}
July 24, 2008 at 1:27 PM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I was talking about you today

That's right. You. Sitting there glued. To the computer screen. Getting your Trevy fix. You who hasn't been able to tear your eyes away. The one who checks back here gobs of times a day. Hanging on every post. Especially the dripping with drama or funny posts. Because you need to either laugh or cry alternately. Just like me. And somewhere...sometime...somehow...over the course of these past couple years... ...you found yourself here. Reading about me. About my family. About my Trevy. And slowly you were drawn in. Until you couldn't help yourself. You were head over heels. Unashamedly addicted. Maybe we connected in a support forum. Perhaps we're old college friends. I know we have family following. Hi guys! Some teachers and therapists. Maybe even a medical professional or two. Perhaps our kids play ball together. We might be FaceBook friends. Or you could be a friend of a friend. Even a complete stranger. But to us... you each have a very special pla...
16 comments
Read more

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.
15 comments
Read more