Skip to main content

on friendship

Without a doubt...much of my sanity since Trevor's diagnosis is founded in the friendships forged from togetherness in this sometimes tragic & scary & even miraculous & happy IS walk.


This...is one of those friends!


She has supported me (virtually...we've never actually met...although I was drawn to her immediately after reading her IS journey & feeling her passion for advocating for these beautiful babies) through many interesting twists & turns that have come along these past few months. If I'm ever published...she very well may be my chief editor!


I've appreciated every bit...but especially the support I found on her blog today...


Take a minute to support me...by supporting her.


And then...perhaps even writing a letter of your own! After all it's that get involved in politics time of year...


::smile::

Comments

Anonymous said…
Good luck tomorrow! We'll be cheering you on from the cyber world:-) Hope you have recovered from your train ordeal.

Erin
Danielle said…
We're good...tired but good. I hope we can make up with early to bed tonight!

Thanks..

...danielle
JSmith5780 said…
You stink... you made me cry! And I have had a really yucky day (thats for another day)!

I am so excited (and nervous) for you tomorrow! Can't wait to hear from you!!
On Monday, I went on the website that Mike had sent out on the IS Yahoo group and saw your name listed. Very official. I immediately sent an e-mail to my senator requesting her to attend with a brief bio of Sophie. I am really proud of you and Jen for pouring so much of your heart and time into this. You both represent us all very well. It inspires me to do more. Good luck tomorrow. I will be thinking about you.
Shanna Grimes said…
Good luck tomorrow (today where you are). You're in my prayers! I read the article about you on Jen's blog to my mom. It was neat to see your name and Trevy's name. You are famous! You go girl!! Hope you and J have a productive trip. Sending you virtual love and support XOXO.
Danielle said…
((((hugs to all of you)))))

...danielle
Anonymous said…
((( Trevor's mom and family )))) I know you will do a great job in DC and you are in my prayers. I will be in touch again soon.

Much love from the Dawg :@}

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...