A whole slew of people were waiting to hear from me after the JEC meeting last month. Including a neurologist/activist who has been instrumental in opening up a new option for IS parents here in the States. Synacthen - the synthetic form of ACTH which is used throughout Europe & Canada. There is controversy in that the side affects may be greater...and it may need to be administered in higher doses. But at around $600 per vial...it's much more affordable than it's natural rival Acthar gel...which can cost up to $40,000 per vial.
Anyway he & I've emailed a bit...and I knew he'd be among the interested. So I whipped out a short email with a link to the Brass & Ivory post. Which by the way...I was terribly happy she'd blogged...since I, myself, was in an exhausted stupor.
He responded me this...
Fantastic! Hope you gave them hell!
Followed shortly by this...
Now that I read the article, I find out you're in the ministry. Sorry.... should have told you to give them heck.
Anyway he & I've emailed a bit...and I knew he'd be among the interested. So I whipped out a short email with a link to the Brass & Ivory post. Which by the way...I was terribly happy she'd blogged...since I, myself, was in an exhausted stupor.
He responded me this...
Fantastic! Hope you gave them hell!
Followed shortly by this...
Now that I read the article, I find out you're in the ministry. Sorry.... should have told you to give them heck.
Comments
I'm not sure where I fit in in the IS community. Most of the time I don't feel like I fit in at all. But your posts make me smile. Thanks!
(((hugs))))
...danielle
How interesting to read the comment left by Andi, because I logged in to tell you how much I love your blog as well! You know I've been a fan for a while, but I just thought it appropriate to tell you that i think your intro describes it perfectly. When I talk to you...when I read your stories....I feel heart connect. It's such a blessing in this scary world that we live in as IS mommys. Thanks for that.
Love Karen
www.greenthevaccines.blogspot.com
That's too funny. We'll after all god is not with out a sense of humor (nor, are you). He must get a great laugh out of watching me have my daily meltdown ;)
Did you ever reply to that email you forwarded me from our mutual friend in CA? *wink*
Oh...and Shanna...I agree...HE does have a sense of humor! And I love to laugh at stuff like that email!
...danielle
There are side-effects and it's all very serious stuff. I trust that you guys are doing well and I really did enjoy meeting you briefly that day at the JEC.
Take care,
Lisa
P.S. Now I kinda am curious to read that entire email. The brief clip I saw was funny enough, but....
...danielle