Skip to main content

makes the medicine go down

Posted by another IS parent on my yahoo support group was a simply lovely story of a family who turned their Special Needs sadness into something beautiful...


...for parents everywhere!


As a mommy of children both special needs and typical...who struggles with the meds on a daily basis these days...I'm saying thanks!


Thank you to the Kramm Fam for turning your struggle into a wonderful tool to help parents...like me...living in the land of yucky-but-necessary meds!


Hmmmm...here's hoping I'll no longer have to head-lock Trevy for his B-6....

Comments

Mrs. M said…
Yay! Thanks for the tip. It's the B6 that we struggled with for R, now it's the Keppra. So, I mix them all together in a bottle of (rice)milk and he takes it no problem. The sideline to this is he's not nursing as much & if I nurse him when he first wakes up he won't take his meds later. Today was one of those mornings. He spit it out of the syringe, so we went to the bottle, which he wouldn't take as he had breastfed earlier. So he finally got them before his morning nap.
Hopefully, the Flavorit works for Trevy. Headlocks are no fun for anyone! Momma or Trevy.
Danielle said…
He doesn't fight so much anymore...or maybe it's that my muscles are bigger! *smile* I've been stirring the Zonegran in chocolate milk...and letting him drink it from a straw. Straws make him VERY happy! *grin*

The battle of the meds...*sigh*

...danielle
Shanna Grimes said…
Cool that he's drinking through a straw.

Thanks for the tip! We also had a lot of trouble with the B-6. We used to mix it with Rice Cereal flavored with pear juice and we'd shoot it in her mouth through a syringe. It was always a difficult one to get down.

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...