Skip to main content

all in a week

We had a lovely visit with my Grandmother & mom's twin sister last week! They made the long trek from upstate NY to see us. (btw Aunt Michelle...I'm really hoping you can figure out how to upload & email those pix! Otherwise your age'll show! ::wink::) In all the Trevy crank-i-ness I forgot to snap some photos myself. And I didn't get to spend near enough time catching up. But it was so cute...they follow Trev's blog religiously...so much so that Aunt Michelle noticed some of Trevy's seizure cues! And in a really sadly-sweet sorta way...it warmed my heart.


Our home has been attacked by the sick-ies.


Trev and his ear infection seem to be on the mend. I'm basing this thought on the fact that he's still napping...almost an hour after being laid down! We haven't had that kinda sleep-y success in over a week!


But now Bristel is down for the count. With a fairly high fever. Which has me debating calling Dr. Pedi for a pee-pee test. Bri has kidney reflux...and even though she hasn't had a UTI since she was 18 mos old...it's still the first thing I always suspect! But the test is always negative...which because I am not as free-spirited as I wish...always makes me blush! Sooooo...I'm thinking if she still have a fev tomorrow I'll swallow my crazy-mommy-pride & ask for the test. Ugh...


And we have dental visits...music class...Trevy labs...therapy sessions...library dates...and various other activities that will keep me hopping this week!


If I find time to upload the Halloween pix...it'll be a success!
Labels:

Comments

Mama Skates said…
good luck with ur week lady! hope everyone feels better ASAP!

xoxox,
sharon
November 3, 2008 at 8:36 AM
Monica~ James~ Connor said…
Wow....you really do have a busy week coming up. Those are nice every one in a while. Sorry to hear about the sick kiddos....that is never fun! Connor and i send them big {{{HUGS}}}}, and ofcourse you too!!
November 3, 2008 at 9:16 AM
Anonymous said…
Hope that Bristel's fever goes down soon!! And hoping that Trevy's ear infection is indeed on the mend.

Hope that Toby stays healthy!!!

{HUGS} to all
November 3, 2008 at 9:45 AM
JSmith5780 said…
So if your Great Aunt lives in upstate NY, that means you SHOULD visit HER sometime and just happen to drive by us and stop for a visit. hint hint!

Hope the week goes by smoothly!
November 3, 2008 at 10:11 AM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more