Skip to main content

hide n' seek

Am I the only one feeling like I can't get everything done in a day that needs doing? Why is it that I love this time of year again? Cause seriously...I'm frazzled...



It's business as usual with Trevy therapies & classes


Our house (wooooow! Goosebump city just saying it out loud!) passed the Saturday inspection with just a few minor things to get taken care of.


We've gotten the two thumbs up regarding our financing. Just a few more details to work through. It's quite stressful btw...ugh! And I'm SO having cold feet moments! I mean...I get nauseous buying a car for crying out loud!


Our close date is set for December 18th...sooooooo could we be in by Christmas? Any takers on help with the painting?!


I'm tempted to just cancel Thanksgiving! Or head to the nearest Cracker Barrel!



We go to Boston tomorrow for Trevy's repeat 3T MRI. Think of us please...I'm not looking forward to this again. Although the IV team is supposed to be on hand...but I have been informed that they do not give gas pre-IV sticking! There was a bit of miscommunication on that one...



I've been fighting off a cold the past few days. I think I'm losing...ugh!


Trev has been super cranky. It's hard to know if it's a Vig reaction. Or the little wean from Zonegran? Or teeth...he's been chew-i-er than normal? But whatever it is...I wish it would pass already!


And I barely have two minutes to sit at the computer anymore. Do I sound as complain-y as I feel? Ugh...sorry. Maybe I'm due for my every few months meltdown?


::grin::


At any rate...I'm busy. Soooooo...if the posts (or comments) are lacking...trust me. I'm there in heart! Just not real time...
Labels:

Comments

JSmith5780 said…
House buying is just so big. My parents I think are beginning to regret the whole darn thing! But you will get through it... and I would offer to paint, but it's a little far right before the Holidays!

Pre-IV... call anesthesia and ask two questions... could they give an oral sedative or could you give Melatonin. Call today so you can be prepared! It's not so much to knock him out but to at least take the edge off to relax him. I really hope things go smoothly tomorrow!

Jeff is getting sick too, he's miserable, which means I am as well.

We'll be thinking of you all tomorrow!
November 24, 2008 at 12:32 PM
Shanna Grimes said…
Ugh, house buying. I feel nauseated just thinking of it. I'm sure it will be a nice Christmas present just to get in to a house. Don't worry about the decorating. That will come with time. Hey, at least boxes and Christmas work ya know? Only time of year it's ok to have boxes around. Just leave them around the tree, LOL!

Good luck tomorrow. I hope you are feeling better. Get lots o' rest tonight! Not that I have to remind you...but let us know how it goes tomorrow.
November 24, 2008 at 3:00 PM
Monica~ James~ Connor said…
Good Luck tomorrow!! See if they can give him some oral Chloral Hydrate for sedation. it will help with both the IV start and the MRI process. It's all so frightening at that age.

Congrats on the house! Can't wait to see pics. As far as Thanksgiving goes...my vote goes for Cracker Barrel! One, because i just love it, and #2 I'm sure the kids could care less where they eat as long as they get to eat.

Maybe we could put Trevy & connor in the same room and let them be grumps together. Meanwhile we could have our meltdown in the next room. Just been so blah lately. I don't like being an adult anymore...it's no fun. Just wish I could find that magic 8 ball to tell me what to do.

Hope you feel better. Get lots of Vitamin C in!! Be careful tomorrow! {{{{{HUGS!}}}}
November 24, 2008 at 8:43 PM
Anonymous said…
Praying that the MRI goes smoothly today!!!

Congrats on the house. I feel your pain and I'm not even moving! I'm just trying to clear out alot of the girls' stuff to make room for the new baby!!! *sigh* You need painting help and I need toy give-a-way help! lol

Hope you feel better soon and hope that Trevy is just getting another tooth. My youngest would get cranky with every tooth...my oldest, once she got the first, we didn't know she got anymore until we spotted them. They didn't bother her at all!
November 25, 2008 at 5:48 AM
Mrs. M said…
Oh, my heart is with you guys today! I pray that it all goes as well as can be expected, that the trip isn't a waste of time and tears, that there are as few pokes as possible (why don't they do gas pre IV? It's almost mean! I'm so sorry about that!), and that it goes better than you could have ever dreamed. Good luck, good luck, good luck!!!
Congrats on the house! It IS stressful, but oh so wonderful once you're settled in. Wuhoo! By the way...I vote for Cracker Barrel!:)
And...you are absolutely entitled to your every-so-often meltdown. Somehow they're almost energizing...after it's through it's like you're able to pick up and go again with a little bit lighter heart.
You and your family are in my prayers today.
Many hugs,
M
November 25, 2008 at 7:37 PM
KC's Warrior Mama said…
Good luck with the MRI! You are in my prayers, as always : ) Congrats on the house! I totally understand how stressfull the process is. Actually if you ever have questions, I am a mortgage loan processor so I might be able to help!
I hope Trevor feels better soon.

Karen
November 25, 2008 at 8:17 PM
Mama Skates said…
not sure how i missed this post - i hope boston went well!

and omg - how exciting about the house! i know it's stressful, but how cool that u could b in b4 xmas! would love to help paint - is the house closer to me than u r now? ~lol~

hope u're having a better week! have a fab thxgiving girl! thinking about u!

xoxox,
sharon
November 26, 2008 at 3:47 PM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more