11.05.2008

IS community announcement

The Study That Can Unlock The Mysteries of Epilespy



What: The Study That Can Unlock The Mysteries of Epilepsy - hosted by BlogTalkRadio will be a segment focusing on the The Epilepsy Phenome/Genome Project which parents of IS children were encouraged to participate in...with the hopes of providing invaluable information for families living with epilepsy now & into the future.



When: Wednesday November 5th from 8 -9 pm. EST


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Just follow the hyper links to find the full information

6 comments:

JSmith5780 said...

Sure... had to show me up with a better post than mine ;)

No really, it's more important to publicize it!

baby trevor's mommy said...

I totally stole the info from you! *wink*

...danielle

Monica, James, Connor McGuire said...

I'll have to try to catch this one. Thanks for letting us know!!!

Shanna Grimes said...

shoot, I missed it!

JSmith5780 said...

Honestly Shanna- Kay may not be eligible for the study, Trevy either. I think they are looking for IS cases with no known cause. If theya re "blaming" Kay's IS on the TS, I believe she is ineligible. Danielle, you'd have to ask about the ARX thing and see what they say. We have completed the interviews, but we still need to complete the bloodwork, which reminds me that I need to call NYU.

Monica, James, Connor McGuire said...

Shanna-
If you click on that link the program is archived towards the bottom. I forgot it too!!! I'll have to listen to it later....got an appt this am