Skip to main content

wheels for James update

Last month I posted a local community fundraiser event for some very special...close friends.



Actually...James' mommy & daddy were the first non-family people we shared Trevor's IS diagnosis with last winter. They came to our home immediately that night...with Dunkin' Donuts comfort coffee in hand! A friendship that started before that sad frosty night...deepened after.



Which is why I'm SO excited to share about the amazing gift they recieved last week. After watching James' story on the evening news another family in the community donated a Special Needs van to James!



James' dinner will still be held...and the monies will be needed to fix the new wheels up for James' specific needs!



Trevy's fam is over the moon to see the community come alongside another family! And I'm here thinking we may just need to get James some new shades for his new ride?!


Congrats James & fam!

Comments

JSmith5780 said…
I truly believe all people WANT to help others, they just sometimes don't know how to. I am SO glad someone saw the news program and donated to the family. That is just awesome.
Shanna Grimes said…
That's awesome! When will we get to see a pic of the new wheels? Glad to hear there are still generous people out there.
labonte4 said…
I'm soooo happy for them! If anyone deserves a break.....It's them!!!
Mrs. M said…
Wow!! That's AMAZING! And so inspiring and gives everyone hope in regards to us sometimes wacky humans.

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...