Ugh!
Why did I have to go and open my stinkin' big mouth?!?!?!
I waited until the end of the week to bring it up. Not that I'm superstitious mind you.
I waited until Jonathan...
and Grams...
agreed.
Until it wasn't just me.
But Murphy's (freakin') Law. Shortly after (and probably before many even read the below post) I said it out loud that we suspected Vigabatrin was perhaps maybe could be doing something. Possibly. Trevy had a massive (over 40 seizures) cluster. And then later another.
And this is what it feels like to open your big mouth. Saying your hopes out loud. And then watching them crash around you again. It sucks!
Ugh...
But on a happier note. We close next week! And I couldn't resist stopping by our (almost) house since I was in the neighborhood anyway. Pure luck.
::wink wink::
I even let the kiddos run around our (almost) yard for a few. I was mid-buckle routine when an oil truck pulled up. I thought surely it was for the neighbors house. But it sure looked like he was on our (almost) property...so I scooted over to be nosey. And sure enough. He was pouring 100 gallons of heating oil into our (almost) tank!
But the thing is...
our (almost) sellers just told us that they were giving us whatever oil was left in the tank!
And they say the Spirit of Christmas is dead!
::smile::
Why did I have to go and open my stinkin' big mouth?!?!?!
I waited until the end of the week to bring it up. Not that I'm superstitious mind you.
I waited until Jonathan...
and Grams...
agreed.
Until it wasn't just me.
But Murphy's (freakin') Law. Shortly after (and probably before many even read the below post) I said it out loud that we suspected Vigabatrin was perhaps maybe could be doing something. Possibly. Trevy had a massive (over 40 seizures) cluster. And then later another.
And this is what it feels like to open your big mouth. Saying your hopes out loud. And then watching them crash around you again. It sucks!
Ugh...
But on a happier note. We close next week! And I couldn't resist stopping by our (almost) house since I was in the neighborhood anyway. Pure luck.
::wink wink::
I even let the kiddos run around our (almost) yard for a few. I was mid-buckle routine when an oil truck pulled up. I thought surely it was for the neighbors house. But it sure looked like he was on our (almost) property...so I scooted over to be nosey. And sure enough. He was pouring 100 gallons of heating oil into our (almost) tank!
But the thing is...
our (almost) sellers just told us that they were giving us whatever oil was left in the tank!
And they say the Spirit of Christmas is dead!
::smile::
Comments
yay about the oil!
hope u have a FAB w/e sweets!
sharon
I know it sucks, but just keep thinking positive!!
We're there with you. Emma's seizures have started again. She's been having them for 2 days now. So we're increasing her Topamax level and now I need to wait for it to level off in her system. That's the hard part.
Wuhoo on the house/heating gift. How wonderful is that!? Congrats!
Are you in packing mode....the wonderful upside down, where's the kids, stop touching the boxes, packing mode? Good luck! I wish for you a smooth move with heaps of helpful movers/friends/family, etc. If I was in town...I would bring you a meal or an empty box or something.:)
How many times have I done this! But...I'll never stop celebrating good days or giving up the hope they could...eventually...stay that way!
Keep ordering that cake! You guys will get there one way or another. These things take time, and LOTS of patience. Its just frustrating going through this process.
I'm sorry hon! Ugh! There's still a chance tho. Let's not give up hope yet.
Warmth for the holidays, always a good thing! At first I had no clue what you were talking about. We don't use oil to heat out here. We barely need heat, period! Wish we did. I miss the cold and the snow!! Not normal to wear shorts on Christmas!