A heart-felt thanks to the Epilepsy Foundation for extending an invitation my way to participate in yesterday's historic FDA hearing.
And for providing me an all expense covered journey there & back.
And for this article posted on your website. I'm thrilled you used the cute picture. Of me. Toby might be complaining someday!
And for providing me an all expense covered journey there & back.
And for this article posted on your website. I'm thrilled you used the cute picture. Of me. Toby might be complaining someday!
Comments
Love it! You and Jen in print for thousands of ppl to read. That's a trip ;) So awesome! Thanks for representing! You go girl!
I'm so PROUD of you Danielle. Way to go!!
I forwarded the article to my contacts at our local Epilepsy office as I thought it's good awareness for all of us Canadians about the difference in systems and how lucky we are sometimes to be under our flawed system.
The use of Vig was close to us. We almost had to make that decision as we were told if the meds Bup is on don't work (it took a while to get the right doseage but they are working) Vig was our last option other than Nuerosurgery and we would have to wait a yr for surgery. It's scary. But we all have to way the pros & cons, make the best decision possible and do what we can to help our little men (in our case, little men). You and your charming husband are doing wonderfully in exercising all the best options for Trevor. That is worth so much more than words can say. It's hard and emotional and there's often second guessing...but one day we'll all receive the honoray medical degrees we deserve and have acquired by fire!:)
You're fabulous, Danielle! Keep care.
M