When I first found Seizure Tracker I thought it was an AMAZING tool...
thus a post ages ago.
But that was during Trevy's seizure free time. So I never had a chance to use the tool myself.
And ever since Trev's seizures returned...ummmmmm...
I've kinda been a seizure tracker slacker.
Especially considering there seems to be no consistency.
For instance...two days this week (including Boston day) we only saw at the most three clusters. And I'm such a sucker too. Cause my heart skipped a beat when we learned that Trevy's put on two pounds! Coming off the Zonisamide has been eye-opening on many levels. Including just how much his little appetite had been suppressed! I was beginning to doubt his smidgen of Italian! So with two extra pounds in play...and only three clusters at most...what else could we do but bump up on Vigabatrin?
And then yesterday?
Attack of the seizures.
I kid you not...during his one hour of OT...Trev had at least five clusters. With at least five seizures per cluster. The math makes me just wanna crawl back in bed and bump up my newly philosophized 3DR (three day rule) to like a 20DR. Minimum.
But instead...I rolled outta bed. And dragged my no-doubt-I-have-a-smidgen-of-Italian-bootay to the computer. And finally...revisited that AMAZING tool. Only this time with seizures to track. In my cozy jamies.