Skip to main content

the very busy life of a SAH-SN-Mommy

Monday is cake. Nuthin' really special happens on Mondays. Mondays are good relax after the weekend kinda days.


Tuesday...we road trip. It's Dr. Boston's second consult. We've learned a lot since that first meeting ages ago. Should be an interesting conversation.


Wednesday...all day in Providence! Dr. Neuro appointment. Again...lots to chat about. Meeting a Craigslister so I can hopefully complete my Gilmore Girls collection! Pluuuuuuus...after months on a waiting list Trevor is finally being accepted into a CEDDAR Center. To be honest...I'm not really sure what exactly CEDDAR does...but I know they are the only service (in RI) that offers respite. And while it took me awhile to get to the place where I felt like we actually needed respite hours...I'm SO there now! For instance...the Snow Angel Ball was this weekend. It's an annual event focused on raising funds towards epilepsy research. And someone sweetly donated tickets to Jonathan & I. I even had the little black dress. Just not the sitter. Grams (wonder woman that she is) can't do everything. And that's why we need respite!


Thursday...early morning coffee with a side of Speech Therapy. Afternoon two hours of Trevy school. And evening consult with a new pediatrician. Which...I might add...could be The One! This based on stories of her hippie...vaccine separating ways. Plus knowing that she accepts our insurance!


Friday...Occupational Therapy is the order of the day.



And then...


we sleep!


So that we can start it all again next Monday...

Comments

Adesta said…
Wow you have busy weeks!! I can see why you just want to relax on Monday's. I don't blame you there! Hope you all have a good week!
January 26, 2009 at 6:00 AM
Sophie's Story by Elaine said…
Can't figure it out...what does the "SN" part stand for? Once you tell me, I will probably feel pretty silly for not knowing. I'll blame it on the fact that I'm pregnant.

Like I just said in the e-mail I just sent you...I don't know how you do all of this with 2 older kids.
January 26, 2009 at 11:27 AM
Sophie's Story by Elaine said…
Hmmm...it just hit me...does it stand for "special needs"?
January 26, 2009 at 11:28 AM
Shanna Grimes said…
Yep, SN=Special Needs ;)

Your schedule sounds like ours, except we have therapy m,t,th,f. No more b-mod wednesday nite, yay! Respite on wednesday's. Don't know for how much longer because our helper may need knee surgery. Don't know what I'll do with out Jamie Poppins!! Throw in a dash of doc's appts and a few sprinkles of tests & hospital stays, IEP's, home schooling, meds & special diets. Ahh...the recipe of life for an SN parent ;)

Cheers!
January 26, 2009 at 11:41 AM
Jonathan said…
I'm exhausted ALL the time!

and Shanna...Jamie Poppins...cute!

...danielle
January 26, 2009 at 4:40 PM
Mrs. M said…
Yay...someone else who knows what it's like to be driven by appointments weekly!
Respite....this is something I'm getting my head around too. We have our first meeting with an organization on Feb 12th. Can't wait to hear how it goes for you!
Good luck today! Safe journey to Boston, hope everyone is in good spirits, the the Docs LISTEN, and that you receive helpful info in return.
January 27, 2009 at 6:04 AM
Post a Comment

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...
22 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...
16 comments
Read more