There will be no live blogging.
Cause they can't hook our stinkin' laptop to the server! Grrrrrrrrrrr...
On the other hand...the EEG head hook-up went fairly well. Took about 45 mins from start to arrival at our room. I swear Trevy should be a hospital model. He rocks the outfit!
Can I just say...it's AWESOME not having that HUGE bed in the room! The pack n' play is perfect! I would totally recommend any parent with a little one bringing one of those puppies along. Makes it feel more homey. Less claustrophobic.
Trev's already put on a good show. Three clusters in as many hours. Once in front of a Dr. Neuro-in-training. And Ms. Nurse. Both with whom we have a really good rapport. They have kind eyes. And just that sweet...we want to rescue this kid attitude. My heart doesn't stand a chance! Love them!
We'll be starting Banzel tonight. 50mgs in the AM. 100mgs in the PM.
Not sure when Vigabatrin'll kick the bucket. Soon I hope!
I'm sitting in the Ronald McDonald House sponsored family room right now. Grateful for the internet access...without which I would totally lose my mind. Not so grateful for the stale donuts & last nights coffee. But they try. More than most.
I was actually thinking on the way up here...that I'd love to put together gift baskets with munchies...maybe a toy...a good book...etc. For families with babies that have to endure this kind of torture. Show of hands from those thinking the Epilepsy Foundation'll be open to sponsoring such a thing when I ask?
Anyway...I'm very rambly. That's cause I feel guilty leaving Jonathan & Trev's trapped in the cell.