Skip to main content

stressin' me out

Seriously...


Sometimes I wish drugs were as easy to come by here as they were in Tanzania. There you just walk into a Chemist...tell em' what you want. And bango. You leave with the stuff.


Here on the other hand...


I feel like I'm constantly banging my head against a wall. Made of pharmacist.


(every time you read the word pharmacist...appropriately colored Devil's red...please mentally add a dripping with sarcasm intonation for the full effect!)


Like the convo I just had regarding Trevor's Topomax. Much similar to previous convos I had regarding ACTH...Zonegran...Banzel...yada yada... I was really hoping to start tonight cause we're awfully low on Vigabatrin. But the pharmacist...all knowing that she is...won't fill the script without clarifying Dr. Neuro's orders.


Which are to split a 25 mg sprinkle capsule in half. For starters. And slowly titer up.


The pharmacist says it's impossible.


I'm like...


lady...when your kid's having 100s of seizures a day...you wouldn't believe what's possible!


She's like...


Well...I need to clarify with Dr. Neuro


Cause I'm an idiot. Right?!


Grrrrrrrrrrrrrrrrrrr...


And suddenly I'm fighting the urge (for the umpteenth time) to thaw that leftover vial of ACTH (that Dr. Neuro really needs to donate for me already before I cave) and go for a 3rd round instead!


I'll show you whats possible!


Pharmacist Sharm-a-fist!


I mean...can't just one stinkin' thing be easy?!?!?!


Is that too much to ask?!?!?!
Labels:

Comments

Mama Skates said…
no it's not too much 2 ask! & i can't imagine the force u want 2 send thru that phone & smack the pharmacist sharm-a-fist with!!! hope it gets easier babe!

xoxox,
sharon
April 14, 2009 at 9:32 AM
KC's Warrior Mama said…
Ahh apparently way too much to ask! j/k Seriously, that stuff is so frustrating. It really is unsettling when you know more than the so called "professionals" that you are dealing with!

Good luck. It's bound to get better soon, right?

Hugs

Karen
April 14, 2009 at 7:36 PM
Shanna Grimes said…
Man, what a pain you have gone thru with getting drugs! WTH? Sorry you have had such a rough time with that. Wish there was something more I could do. It's definitely easier if you can arrange it to order it instead of doing it thru the pharmacy. They NEVER had it, so I always had to order it anyway and wait for a day or two. There was a couple times that I had to go get samples from the dr. because they couldn't get it in time b4 she ran out.
April 16, 2009 at 5:56 PM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

runaway

I tend to be a live out loud kinda girl. But sometimes... well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me. Like lately. The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to. It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house. I am a coward after all. I've never denied that. And I really don't want to live through this next month. Which is probably why my posts will be random. At best.
15 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more