To fully appreciate this little story...I have to take you back a couple months ago...
Way back to Trevy's last in-patient stay. Which was a dual purpose visit.
VEEG. The results of which still make me sad every time I have to go remembering.
And introduce Banzel (Rufinamide). Dr. Neuro had concerns because Trevy is SO young. I also think she has a soft spot for him...and wanted him monitored during the initiation phase.
*** This is where I insert a little insider seizure parenting tip. Always always keep the phone numbers of the pharmacies you frequent most in your cell. Or day timer if you're old school like me. Or where ever you find most handy.
I say this...because if you have a child with med-resistant (refractory) seizures...chances are you'll be using funky drugs. In funky-er dosages. That your pharmacy on the corner may not have in stock. And should you have already introduced said drug compliments of the hospital pharmacy. Because they had a heads-up your lil' funky dosage seizure boy was coming. Well...it could just complicate things if you are then discharged only to waltz over to your local RiteAid on the corner and discover that not only do they not have it in stock. They also cannot acquire the dosage you need. Because you have a lil' squirt. Who needs lil' pills. And their lil' distributor doesn't dish out funky dose hope pills.
It's much easier to have that convo over the phone. Where they can't see your vein throbbing. And eyes bulging. And face blood pressure flushing. Cause your lil' squirt has gobs of seizures all day...and the lil'est thing can totally stress you out!
Which you probably figured out is exactly what happened twixt me & my RiteAid on the corner.****
Oh but it didn't end there. Nooooooo sir-ee.
They proceeded to stress me out again when I went to refill Trevy's Topiramate a couple weeks later. Firstly...the pharmacist just could not wrap her mind around a Titration (gradual increase) Schedule. Which Dr. Neuro had faxed to her. Felt like I stood there for hours trying to explain to her that I have a 2 year old. With gobs of daily seizures. Who needs gradual introduction. And reduction. And that although Dr. Neuro faxed her a schedule...it is fluid. Based on my mommy instincts. She's an obvious by the book type. Wow...did I have a headache! And the real kicker was even though I had phoned in my refill three days prior...they had neglected to refill it because of all the questions. And had also neglected to call and question me. And had neglected to contact their supplier. So there we stood. Me empty pill bottle in hand. Seizure Boy on hip. Them all questions and no pills. And it was the weekend! Which meant no supplies til' Monday. Except Monday was a holiday. So it would be Tuesday!
In a panic I called the CVS that used to be around the corner. Before we had to go and move!
And CVS was excellent! No questions regarding schedules. And even though they did not have the generic Topomax stocked. They gave me enough (plus some) of the brand pills to get me through until their non-Holiday honoring supplier could bring the remaining portion along. They also had no issues getting the low dose Banzel either.
It was SO smooth I almost decided to just keep using them. But they're on a corner now located a solid 10 minutes (by car) away. RiteAid is at most 2 minutes (on foot) away.
So I decided to give them one more shot. After all...Trevy takes some hard core meds. Which come at a hard core prices.
Profit margins, baby!
So the other day...I call in my last-chance-refill. Chip on shoulder albeit. I was not disappointed. There were issues.
"I'm sorry Mrs. Foltz but we need a prior authorization from your doctor for your insurance"
"Fine...I'll call them...but I NEED these meds today!"
"I understand Mrs. Foltz. Sorry for the delay. We have the medicine in stock for you. We just need the paperwork for billing purposes"
And then phone Dr. Neuro's office. Who are always wonderful with this kinda thing. Except that day as I found out when I called back late afternoon to check on the refill status.
"We still don't have the prior authorization. But you could purchase out of pocket enough for the weekend"
By this time I was fuming! I told the girl on the other end of the phone how sorry I was that she happened to pick up that line. And then proceeded (patience to the wind) to rip into her. About past issues. And present. And about how I had NO DOUBT if I called CVS...if they didn't have it in stock I would be given at NO COST enough pills to carry me through until the paperwork was all in order! And a bunch of other highly emotional and probably unnecessary stuff. Because having a seizure boy in the house tends to shorten the stress fuse.
"I understand Mrs. Foltz please hold"
Two minutes later...
"Mrs. Foltz we can give you the first 40 pills if you come on up. So sorry for the hassel"
"Thanks I'll be right up. And by the way...sorry for the ambush...it's really not personal"
Emotional maybe. Stressful definately. Necessary...obviously.
Not to make a long story longer...buuuuut wouldn't you know it...
I pull into the drive up after having just received word from Dr. Neuro's office that all the paperwork had been processed & faxed to the pharmacy. And tell the young man at the window the great news. Happy that I can now just get the whole script all at once. Which he references on his computer to be true.
Except that somewhere between my morning convo when I was assured they had enough in stock to fill the prescription...
...and my pull up to the window.
You guessed it. They were not (fully) stocked. And I was given a bottle containing the pre-said 40 sprinkle caps. And would have to return the next day for the rest.
The guy was apologetic. And in attempt at smoothing ruffled feathers said,
"Trevor will be happy Mrs. Foltz! We gave him a little gift!"
And sure enough. In the bag holding the under-filled prescription was a little 50 cent bear. Sporting the RiteAid logo.
Which fittingly Trevy is having a grand time launching...and stomping...and bashing...all around the house!
Seriously, RiteAid! You think we can be bought by a 50 cent bear!
Is it just me? Am I just huge-ly unlucky...or do you guys have pharmacy issues too? Feel free to share your pharmacuetical horror stories...and insider tips...