Skip to main content

runaway

I tend to be a live out loud kinda girl.



But sometimes...



well...sometimes life is just so heavy. So intense. So overwhemling. That it brings out the recluse in me.



Like lately.



The thing is...I know it'll pass. It always does. And I'll learn something. Grow. Hopefully. Survive. Certainly. Because I have to.



It's just right now. In this particular heavy moment. I would much rather run away to some tropical paradise and sip martinis until Jonathan calls to tell me Trevy's back at home. Happy. And seizure free. With a new head of curls covering the scar and bouncing around the house.



I am a coward after all. I've never denied that.



And I really don't want to live through this next month.



Which is probably why my posts will be random. At best.



Comments

kristi said…
I understand. Sometimes you have to just step away and try to breathe.

HUGS.
JSmith5780 said…
Don't apologize for any lack of posts or randomness. You have a lot on your plate with surgery a month away.

I'll be glad to come sip those martinis (well beer at least!) with you!
Colby said…
Hey, Girl...

I feel for you SO MUCH....I sit here and try to imagine what it would be like to have someone tell me Colby had a chance at seizure freedom....It is so foreign to me...I wish I knew something to say to really make things easier for you....

But I think you will see that this month will go quicker than you expect...Try to rest when you can....And know that you have made the best decision for your son....

I wish we lived close so I could hug you tight!!!

Blessings...

Cyndi
You WILL get through this... Allow yourself "ME" time sometimes. But, also surround yourself with people who love you. When you think you can't do "it" anymore, they will carry you through it....
lots of hugs and love,
Marcia
Hannah and Blitzen
Joel and Cynthia said…
Just know that we are praying and and, when you post, we will be reading and in the mean times...begging the Lord to take good care of you all.
brendalynn said…
you will get though it danielle. i know you will. ill be continuing to pray or you guys. i love you.
Holli said…
That's so me too. Kind of like how I cover my eyes during a scary movie and wait til it's safe to watch again. I never want to go through the motions of life if they're trying. I just want to press fast forward and get to the good part.

I know this has GOT to be the most crazy, exciting... yet extremely terrifying time for you.

And, you're right, you will grow and survive. But, the suspense and anticipation is killer.

We will ALL be here to cheer you on this next month. And Praying. And when October comes, still praying and cheering for you.
Anonymous said…
D,
we love you so much! I just read joel and cynthia's comments and i thought what a blessing we have to be connected with them in Brazil and to know you and the family are just being wrapped up in so many prayers from all over the world.
we love you so much and just know you can rest in the support of all of us praying.
love you bunches,
Connie
I'm a margarita girl myself. Between being pregnant with Elsa, nursing and being pregnant with Charlie...I had to wait over 2 years to have one again...and oh was it YUMMY!!! I can picture it now...us sitting outside on a nice warm day with a cool breeze sipping our yummies with Trev and Soph running around seizure free. Because I know someday, I will get to see those beautiful curls in person and I have so much hope that he will be seizure free when I do. And then this time that you are going through right now will seem less nightmarish and more miraclish.
Katie Ireland said…
Keep your head up...even if it is under the covers. Lean on your husband.

Praying for the best for Trevor!

Katie
MJStump said…
Danielle,

I'm with you..tropical island and coming back to the reality of everything when the coast is clear. Sometimes I think of how great it would be to escape the craziness that life brings.

We look back now and can't believe how we survived the ACTH, and how scary it was those first few days in the hospital with the whole IS diagnosis. But we always get through those crazy times and think wow, how did we ever do it.

You are an awesome mommy, and you will get through this and anything else that comes along...all for your kiddos.

We aren't traveling the path that you and so many others have traveled with the surgery, but look back and see how far you've come...just gotta keep on going. Maybe it's lame but listen to "The Climb" by Mylie Cyrus. We heard it over and over again on the TV in the hospital with Kylie, and it is now our song for her. I cry when I hear it and well, it's all just so fitting.

Sending hugs and prayers your way,
Jody
Adesta said…
Hey, I happen to love the random posts that you do!! teeheehee

I think we can all understand why your posts would be random and just out there....you've got other, much more important things to focus on right now.

Just remember that we are all right here with you and praying alongside of you all for Trevy. {hugs}
Mama Skates said…
u know we'll b patiently waiting...& praying! u b as random as u wanna b girl!

i've said it b4 & i'll say it again - i have no idea how hard it is 2 go thru what u're dealing with! i think u r the perfect example of love, strength, grace & beauty!
blogzilly said…
That's interesting. We'd had a discussion this week about how I'd wished I could have been placed into a Cryotube and frozen for a year while we worked all this stuff out for Bennett.

Sometimes this week I really wished for it. Probably will again. But then what I always remind myself of the good I would have missed, and then (aside from maybe losing my cool for a few days) I can find some reason to plow forward.
i can't even imagine what you are going through...emotionally & physically so I'm not even going to pretend. All I've got for you is a great big {{{{hug}}}}, and an offer to escape & drink some cold ones with ya!!

Popular posts from this blog

I cried when I got the news

I felt like such a heel not going with Trevy for his first post hemi EEG. Yeeeeeees...Jonathan went with him. Yeeeeeees...he's just as good as me. But still! He's my baby! I was instead sitting on floor 6 east waiting for Neurology to get their boots here and help me sort out this medicine mess! Seriously it's like a bad joke...how many Neurologists does it take to write a bloody script? And fax prior authorizations? Cause Trevy's been back for hours now. And I'm STILL waiting! Anyway... Jonathan had just stepped out to meet the pizza delivery guy when Dr. EEG made his rounds. Of course I asked immediately if he had read the EEG. Of course he had. That's why he was there afterall. And I cried when he told me... that for the first time in almost two years. For the first time since this whole crazy mess began. my baby's EEG is completely normal! Side Note: It's super fun to sob in front of Japanese men and watch them squirm When I kept repeati...

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...

it's like being asked to the prom...

only MUCH MUCH bigger! I had noticed (yes...I stalk my site meter!) that a government ISP had logged onto Trevor's blog. Whoever it was had spent a good deal of time hanging out too. Followed a few minutes later by a government ISP...hailing from Washington. As in DC! My eyebrow raised. It was just kinda odd. Note-able odd. You know? Anyway...later that day (last week) I was folding laundry & thinking my crazy insane thoughts. Along these lines... I hope I'm not saying anything I shouldn't! Maybe I made somebody mad? Wait a minute! I live in America! I'm allowed to say anything I want! Aren't I???? A shout from the other room interrupted my thoughts before I had a chance to further mull. It was Jonathan. I had just received an email. **Side note...he's always doing that! Reading my emails! Sheesh!*** The said email was from a US Senator's aide! Asking if he could speak with me. Little ole' hardly has time to splash some make-up on ...