Thursday night we'll kiss Toby and Bristel goodbye. They'll be staying behind with Grams and PopPop. We felt that made the most sense all the way around. Just try telling that to my arms which are already feeling cuddle withdrawal pangs. The car will be packed and ready for take off early the next morning. After our big flying fiasco last time. And the fact that I'm not comfy with Trevor having brain surgery and being 30,000 miles above the nearest Children's Hospital. We've opted to drive this go. Mapquest tells us to expect 13 hours.
So we leave early Friday morning, October 2nd. Hoping to make it over half way that first clip.
Arrive in Detroit Saturday, October 3rd. And then the real stuff begins.
So we leave early Friday morning, October 2nd. Hoping to make it over half way that first clip.
Arrive in Detroit Saturday, October 3rd. And then the real stuff begins.
- October 4th, Trevor will have a sedated MRI.
- October 5th, sedated PET scan in the am. Meet with Dr. Neuro-surgeon in the pm.
- October 6th, GRID placement.
- October 7th-8th, spent in-patient with grids collecting essential data pre-surgery.
- October 9th, Subtotal Hemispherectomy.
Comments
We have a much mis-translated saying in Ireland "Go n-éirí an bóthar leat" (may the road rise to meet you...) which means "may you have a successful journey" I hope this is very successful and you get all you hope and dream for Trevor and he responds well and it helps him reach his potential.
Your family will be in my prayers. Here's to seizure freedom!
Erin M.
Praying that you have a safe trip, and that the seizure monster will be slayed once and for all, and your beautiful butterfly will really spread his wings and fly like no other.
Sending you hugs and a sense of peace as you prepare for the days ahead.
Jody
All kidding aside, I hope you all have a safe, hassle-free drive there. Trevy's miracle awaits!
By the way, will you be online and updating then?
You are sooo in my thoughts and prayers right now. Although the most terrifying thing you have ever done, hang tight to the big picture... Wow....seizure freedom. You are awesome. Trevor is awesome.... Lots of hugs and love.
Marcia
Wow, what a journey it's been, what a journey it will be, for you and Trevor.
You know I hope for nothing but the best of the very best for Trevor, and I like what Sinead said so I won't try to top it. The Irish have great sayings.
Lisa...I hope you're gone too! ((((hugs))))
Jen & Adesta...Jonathan's supposed to be providing me with route info. If there's a Cracker Barrel near you guys...and we're passing by...we'll wait and have breakfast there!
Erin...ha and here I've been complaining that we're there for half a week waiting on testing! All about perspective...right.
Jody...thanks, hon!
Holli...I truly WISH that we did have to pass through your zone! Love you, shnooks!
Marcia...the company I keep is awesome too! xoxo
Ken...it has been one heck of a journey, huh. (((((hugs))))))
...danielle
I am sure you are on pins and needles, and have been for some time...I am sending HUGE hugs and prayers for Trev...we all deserve a miracle for these little ones and I am praying for your miracle to be delivered through this procedure.
As you continue to walk through this, and the days ahead, through the fears, anticipations, rattled nerves, tears of worry and hope...remember to listen to "the voice of truth" ...it is so easy and natural to let our minds take us places...so just listen to His voice,feel His comfort, and He will fill you with peace.
I will be looking for updates and praying like crazy!
HUGS, HUGS, HUGS....
Let me know, I will gladly take the morning off!
Praying for Trevy and his family.
Barbara
We're all rooting for Trevy! Me & my little family will be praying for Trevy, you and your family.
My heart is with you all.
Many hugs,
Margo