Skip to main content

and he laughed

Not Trevy. Although he's done his fair share of smiling today! Even at hospital staff...when he's not screaming at them for poking him or pulling stitches.



But it was another guy who laughed.



Dr. Rockstar.



When I told him that...



Today is wonderful!



But a few days ago?



I was suffering a nasty case of Buyer's Remorse!



I don't think he's ever had another parent voice that to him before. It was kinda fun...
Labels:

Comments

joanne foltz said…
I am so glad things seem to be turning around! Wish I could be there but my prayers and thoughts are. Give both the boys a hug from Bibi!!
October 19, 2009 at 8:36 AM
Colby said…
You know it must warm Dr. Rockstar's heart to hear words like that! Just like it does our's!

So thankful things are turning around and hope y'all are in your own little nest soon.....

Cyndi
October 19, 2009 at 8:45 AM
Sophie's Story by Elaine said…
What do you think he would say if you told him you referred to him as Dr. Rockstar??? LOL...I would love to see that reaction!!!
October 19, 2009 at 9:12 AM
Danielle said…
Bibi...wish you could see him now! Such a different kid!

Cyndi...((((Hugs))))

Elaine...hmmmmm you think I should tell him?

...danielle
October 19, 2009 at 9:59 AM
Katy Duddridge said…
Def tell him, when you get the discharge though!

So glad the Trevy is coming through this.

We had a talk today and decided that drug-controlled seizures is what we should aim/hope for. Not being negative but trying to be realistic. And if in years to come we say, "Oh yes, my son is epileptic, but he takes his drugs and he's fine, has been for years....then that's just fine by us."

How times & expectations change.

God bless and get home soon! xxx
October 19, 2009 at 12:05 PM
Danielle said…
Katy...I think it's good to be realistic too. Like knowing just how big the scar will be for instance! It's shocking...but then it's healed up so quickly too! Which is also shocking. :)

Anyway...I really deeply appreciated your thoughts.

xxx back

...danielle
October 19, 2009 at 12:34 PM
blogzilly said…
Yeah I'm with Elaine, I want to know his reaction to the Rockstar thing, or the fact that all of us talk about him on the WWW.
October 19, 2009 at 1:36 PM
Monica~ James~ Connor said…
yeah, definitely tell him...as you are walking out of the door. You don't want to give him a case of the "big head" while you are there. He might keep you forever then. =-)
October 20, 2009 at 7:23 AM
Post a Comment

Popular posts from this blog

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

I sure hope...

they grow back curly! Saw the "unknown" flashing on the face of my cell phone and knew who it was. Who it had to be. Dr. Fellow. My eyes met Grams' and I nodded. Grams has a pool, see. For super hot days like today. We're also having a septic installed. Which meant no water or facilities at my place. But those weren't really the reasons I was there. Close to mom. The purple ringing thing in my hand was. Only I wasn't prepared for it to be ringing SO darn soon. Shortly after lunch instead of dinner! I swallowed. Took a deep breath. And clicked connect. Dr. Fellow has a very nice phone tone. Clear. Hint of compassion. If only a stitch of humor were added...it'd be heavenly. But there was no humor. Just business. He's very direct. I'm learning that about him. Which explains his short hello. Followed by immediately pushing into the news. Being that it was a unanimous consensus. The entire surgical committee feels Trevor is a good candidate. And then p...
27 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more