Skip to main content

the crooked smile and other stuff (a picture marathon)

The Crooked Smile...


it's subtle...


but it's there...

if you look really really closely...you'll notice that his left lips are slightly more upward and expressive than his right.

But like I said...I've always been a sucker for crooked smiles!

Which one of the Three Stooges does he remind you of in this picture?

The Boo-Boo Bear...


Uncle Dave & Aunt Deb live about two hours from here...so they were able to come for a little visit. And bring a bag of goodies...including the adorable Boo-Boo Bear which Aunt Deb wrapped up ust like Trevy was!



Yesterday was such a stressful day...but we had some unexpected special treats delivered to our room!
One of Trevy's Brain Surgery Buddies sent those yummy cookies above!


And another little hero and his family (from the other side of the pond!) sent Trevy some fun trucks to cheer him up!
It also so happened that my brother (who lives in Toronto with his fam) bought us a delissssssh Spaghetti & Meatball dinner and have it delivered to our room!
Thanks everybody for the prayers...emails...gifts...and all that jazz! We appreciate it deeply!

Comments

Ashley Potvin said…
I LOVE the boo-boo bear!! I had a friend who had a double lung transplant when she was 20, and the nurses sewed on 2 lungs to the bear she had since she was a baby. She loved it. I'm sure Trevy will always love his bear who is just like him with that lovely curly hair!!

Hugs and kisses to the brave hero! And his parents too who are doing amazing!

Ashley
October 15, 2009 at 6:13 AM
Adesta said…
Oh! That smile!! It's beautiful D!!! I never really thought about crooked smiles, but Trevy's is just darling!!!

I can SO totally see the Larry resemblence in that one pic!!! TOO cute!

Trevy looks wonderful. The light in his eyes just whispers, just wait until they unhook me...you all are gonna be chasing me!!! lol Are you still set to be released tomorrow?
October 15, 2009 at 6:29 AM
Jackson's Blog said…
Trevor looks really good! Hopefully you get to go home soon! ;-)
October 15, 2009 at 7:45 AM
Shelby said…
This blog entry has just made my morning sooo much better :) I am still just amazed that he looks great, has that beautiful little crooked smile, and the one of him with those gorgeous eyes looking right at the camera with the cute "I didn't do it" in that sweet mouth...your boy truly is a blessing from God who is showing us all what a wonderful God we have and that nothing is impossible. Still praying for great days, new great things to happen, and NO SEIZURES !!!!
October 15, 2009 at 7:52 AM
Holli said…
Wow, he looks so great! And that smile...that melt your heart smile! Crooked and all, it's just precious.

Hoping today is MUCH better than yesterday. No surprises (unless they're good ones, of course) and NO vomiting! Oh, and tons of those sweet, crooked smiles!! :)
October 15, 2009 at 8:38 AM
JSmith5780 said…
He's looking more chipper every day. That makes me so happy.

Hugs to you all
October 15, 2009 at 9:17 AM
Lisa said…
He is so adorable!!! I love his curls! Daniel has the best curls too, I want to grow them out like Trevy's. Glad you got the cookies! We snacked so much while we were there, I figured you might want to take a break from the vending machine too. :) Hugs to you all!
October 15, 2009 at 4:09 PM
Colby said…
Love LOVE these!!!

He is so beautiful!!!!!

Cyndi
October 15, 2009 at 5:54 PM
Post a Comment

Popular posts from this blog

a different kind of muscle — guardianship process

  To all the parents who have walked through the guardianship process — my heart is with you. Our paperwork is prepped and ready to submit this week. He turns 18 on April 3rd. I've been thinking about this for a year now, but only just mustered the energy to move forward — the loom of his birthday my propellant. Overwhelm has paralyzing effect. I'm struggling to recall the last time I didn't feel overwhelmed. It struck me how all these years of walking through disability beside Trevor should have made me stronger and yet... I suppose it's a different kind of muscle being developed.
1 comment
Read more

No, I don’t know him personally

  I’ve had several emails today asking if I know Mike W. of Marissa’s Bunny personally.    Trevy’s blog was linked on her site.  Although it’s not now.     I’ve posted here and there at his request.  Because…well…we’re a community.  Us IS families.  And Marissa is wicked cute.  Her daddy has a way with words.  Also who wouldn’t want the world to know about an iPad give-away?    But aside from that…I know about as much as you do.    We’ve never met in person.    Our only communication has been cyber.    I’m a ginormous sap and as such would love to believe that all is right.  That the sweet, beautiful families who were promised iPads will be getting them tonight.  Tomorrow at the latest.  That no one has been lied to.  That the personal thank you for your generosity email I sent him on behalf of other IS families I’ve grown to love and was thrilled to learn w...
23 comments
Read more

the great answer hunt in the land of Infantile Spasms

If I've said it once... I've thought it a million times more. How it's like the more I research...and discover...about IS. The more blurry everything becomes. For every answer found. A dozen questions are unearthed. Remember our whole ARX saga ? Yeah...that threw me for a loop. So much so...that I never went on to post the end of the story. Thus far... See...the unbelievable in the world of genes happened. Because this is IS-ville after all. After Dr. Genes sampled Trevy's ARX gene on a whim...a whim which revealed an unkown (meaning the first time this specific change was found) mild mutation...she proceeded to send Toby's blood off to mad scientist central. With assurances that this was totally unnecessary . She was convinced that Trevor's ARX mutation was the underlying cause of his Infantile Spasms. And that Typical Toby...would prove to be just that. Typical...at least in all areas mutate-able. And yet...Toby's ARX blood sample revealed THE SAME MIL...
14 comments
Read more