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the room may be better...

but the night wasn't.



Although Bibi took the over night shift so it's not sleep deprivation complaining. It's just heart break.



Both of his eyes are swollen shut now. And he can't get comfy. He's thrashing and rubbing agressively at his eyes and nose.



We're going to ask for a big bed. So we can lay with him. Because he finds comfort in touch.



Posting will probably be limited today.
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Comments

Adesta said…
Praying that you all will get the big bed and help comfort Trevy. Oh how I wish I could be there with you guys to help out. {hugs} Stay strong guys...
October 8, 2009 at 4:34 AM
Anonymous said…
Praying for you and Trevy. This is so hard to be so many miles away.
I love you Mom
October 8, 2009 at 5:07 AM
Bacon Wife said…
Oh, Danielle, i am praying so hard for you today and for Trevy.
May God wrap all of you up in his arms and give you comfort and peace and let them give you really big bed!
Love you bunches, hang in there.
Connie
October 8, 2009 at 6:24 AM
KC's Warrior Mama said…
Awe honey I am so sorry. I can't imagine how hard this must be on your heart. My hope is that Trevy won't remember any of this...although I know that you will never forget. Just keep loving him fiercely like you have been doing...it will carry him through. The worst will soon be over. Praying for you.

Love Karen
October 8, 2009 at 6:31 AM
blogzilly said…
Awww...probably best to post less and snuggle more today.
October 8, 2009 at 6:36 AM
Holli said…
What Ken said. You just give Trevy your undivided attention and we'll all be praying for him to rest. Don't worry about posting...we know comforting him comes first.

Love you guys...
October 8, 2009 at 7:04 AM
Liz said…
I am sure y'all already have it by now, but when we were there in the VMR rooms (obviously with less hooked up to her) we got a regular hospital bed instead of a crib. I always sleep with her in the hospital, so I put my foot down about it.

Hoping y'all get lots of quiet cuddle time today.

Hugs!
October 8, 2009 at 7:40 AM
Lisa said…
If it brings any comfort at all, Julia had the exact same day Sunday/Monday, right before the resection. Both eyes shut, thrashing, miserable...we all were. It sucks. I cried several times that day. Hoping you can get a big bed and snuggle with him. We didn't ask even though it crossed my mind and I wish we would have.
October 8, 2009 at 8:37 AM
Sophie's Story by Elaine said…
Today was hard for us too. The only thing that got us through it was the thought of surgery the next day. Crazy to think that was a calming thought. I just knew after surgery, she would be more comfy. Because the grids and wires are heavy, bulky and just hard to get comfy with. I hope the data and testing is going well. Love and hugs.
October 8, 2009 at 9:10 AM
Jackson's Blog said…
For us, the time between the two surgeries was much harder than after the resection. I thought the surgery could not come fast enough! I could not stand seeing Jackson thrash around and go through what all he did in that week. However, it will all be behind you soon. Hang in there. Hoping Trevor is a little more restful today.
October 8, 2009 at 10:02 AM
Mrs. M said…
The big bed is a great idea! I hope they come through for you guys. Trevy, you and Jonathon will all feel better being able to snuggle up together.
BIG hugs,
Margo
October 8, 2009 at 2:41 PM
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