I'm convinced that the drugs have done it to him.
Built up a high tolerance to sedatives.
I mean, he's been on hard core seizure meds for how long now? Yeah...exactly. Which is why I'm convinced that he's untouchable with the sleep meds. And has a tolerance of steel. A tolerance that leads to events like today's.
See...we were just supposed to be there for an easy peasy CAT scan. Not an all day event!
Nothing to worry over. It was simply follow up stuff. The only reason I'm even a smidge of curious about the results is because Trevy has been VERY sensitive to all things head-ish. He hasn't been acting like he's in pain. And no throwing up since that virus made rounds. Certainly no exhaustion. It's just not pleasant putting shirts on these days. Or pouring water over his head. Things that Seizure Trevy didn't mind at all. Seizure Free Trevy...not digging it. Let me take this opportunity to insert (for you, Ken) that otherwise...he is doing AMAZING! I know I haven't said much about his recovery. It's just that I want to share it well. I'm not a whip it out kinda blogger. I need time...to sit...and think...and visit one of my favorite websites - Thesaurus.com. And I just haven't had the chance. Because turns out Amazing Boy is also Needy Boy! Anyway...all that to say...I'm sure the scan will be 100% A okay. Just the way we like it. It's just that I'ma smidge curious enough that I emailed Dr. Neuro already. No word yet.
The CAT scan being the easiest among all the neurological testing we've ever had to endure. And we've been through some neuro hoops. We opted against the IV med route. Choosing instead to use the nasal Versed.
20 minutes and a completely darkly hushed room later...Trevy was still wide eyed. And over-using (if such a thing is possible when you've only just learned to say a word consistently!) his new word.
The quiet was punctuated with random "hi"s. In varying pitch and decibel.
So Nurse Practitioner gave him something else. I don't remember the name. But I do remember where it went. Up the...ahem!
Another 20 minutes later and Trevy was now not just saying "hi" every five minutes. He was also punch happy. And giggling with his "hi"s. I have a feeling he'll be a happy drunk.
::grin::
Sooooo...another round of up the boot we go.
Still no sleepy. I'm fairly sure we were all exasperated by that point! So a joint decision was made to take him the scan room and just try. All they needed was a few seconds of calm. And that was all they got. The rest was screaming. And fighting. And kicking. Or trying rather. He was swaddled up like a baby bunting. And strapped with a large velcro band to the sterile white table. That moved up and down and into the big open circle scanner. While Trevy pitched a fit. And mommy n' daddy serenaded him with every toddler tune we could think of.
Until the machine booted down. Then he decided it was time to sleep of course. Seriously. It was lights out.
Thankfully the images were enough according to Dr. Radiologist. Plus, I hit the nurse jackpot! So happened that one of the girls knew a thing or two about cutting hair. So we took advantage of the sleepy time. And gave Trevy a new...much shorter...do! It looks much better...says Obsessive Me!
We chatted a bit while she was snipping here, there and everywhere. Of course, the topic of his scar came up. She asked what type of surgery he had and why. I broke out my little memorized shpeal. With which most people usually just politely nod along. Not Nurse Beauty Shop. When I told her he had his entire left field (as Dr. Rockstar would say) removed...she stopped mid-snip and said (and I quote)...
"No Shhhhhmack!"
Okay...so Conservative Me edited. But you get the idea!
I laughed out loud. Then proceeded to thank her for treating it like the big deal it is! Cause, honestly, it's a little creepy to get the polite nod when you tell someone that the scar...running from front to back of his little two year old head...is covering the area where there used to be a left hemisphere. And now isn't.
I think radical brain surgery is worth a potty word or two.
Built up a high tolerance to sedatives.
I mean, he's been on hard core seizure meds for how long now? Yeah...exactly. Which is why I'm convinced that he's untouchable with the sleep meds. And has a tolerance of steel. A tolerance that leads to events like today's.
See...we were just supposed to be there for an easy peasy CAT scan. Not an all day event!
Nothing to worry over. It was simply follow up stuff. The only reason I'm even a smidge of curious about the results is because Trevy has been VERY sensitive to all things head-ish. He hasn't been acting like he's in pain. And no throwing up since that virus made rounds. Certainly no exhaustion. It's just not pleasant putting shirts on these days. Or pouring water over his head. Things that Seizure Trevy didn't mind at all. Seizure Free Trevy...not digging it. Let me take this opportunity to insert (for you, Ken) that otherwise...he is doing AMAZING! I know I haven't said much about his recovery. It's just that I want to share it well. I'm not a whip it out kinda blogger. I need time...to sit...and think...and visit one of my favorite websites - Thesaurus.com. And I just haven't had the chance. Because turns out Amazing Boy is also Needy Boy! Anyway...all that to say...I'm sure the scan will be 100% A okay. Just the way we like it. It's just that I'ma smidge curious enough that I emailed Dr. Neuro already. No word yet.
The CAT scan being the easiest among all the neurological testing we've ever had to endure. And we've been through some neuro hoops. We opted against the IV med route. Choosing instead to use the nasal Versed.
20 minutes and a completely darkly hushed room later...Trevy was still wide eyed. And over-using (if such a thing is possible when you've only just learned to say a word consistently!) his new word.
The quiet was punctuated with random "hi"s. In varying pitch and decibel.
So Nurse Practitioner gave him something else. I don't remember the name. But I do remember where it went. Up the...ahem!
Another 20 minutes later and Trevy was now not just saying "hi" every five minutes. He was also punch happy. And giggling with his "hi"s. I have a feeling he'll be a happy drunk.
::grin::
Sooooo...another round of up the boot we go.
Still no sleepy. I'm fairly sure we were all exasperated by that point! So a joint decision was made to take him the scan room and just try. All they needed was a few seconds of calm. And that was all they got. The rest was screaming. And fighting. And kicking. Or trying rather. He was swaddled up like a baby bunting. And strapped with a large velcro band to the sterile white table. That moved up and down and into the big open circle scanner. While Trevy pitched a fit. And mommy n' daddy serenaded him with every toddler tune we could think of.
Until the machine booted down. Then he decided it was time to sleep of course. Seriously. It was lights out.
Thankfully the images were enough according to Dr. Radiologist. Plus, I hit the nurse jackpot! So happened that one of the girls knew a thing or two about cutting hair. So we took advantage of the sleepy time. And gave Trevy a new...much shorter...do! It looks much better...says Obsessive Me!
We chatted a bit while she was snipping here, there and everywhere. Of course, the topic of his scar came up. She asked what type of surgery he had and why. I broke out my little memorized shpeal. With which most people usually just politely nod along. Not Nurse Beauty Shop. When I told her he had his entire left field (as Dr. Rockstar would say) removed...she stopped mid-snip and said (and I quote)...
"No Shhhhhmack!"
Okay...so Conservative Me edited. But you get the idea!
I laughed out loud. Then proceeded to thank her for treating it like the big deal it is! Cause, honestly, it's a little creepy to get the polite nod when you tell someone that the scar...running from front to back of his little two year old head...is covering the area where there used to be a left hemisphere. And now isn't.
I think radical brain surgery is worth a potty word or two.
Comments
Glad to hear everything is going well.
Erin M.
Can't wait to see his new 'do
Esp your secret thinking-and-using Thesaurus.com pre-post.
No.
MORE especially that he is doing AMAZING.
Because fricklemyfunnybone, he had some rad scalpelpartingneuronremoving surgery.
I think big words beat potty talk. But that's just me. ;)
Barbara
All these things are great signs. "Best patient ever" means brain so messed up with epileptiform activty that the world passes by. "my child is so good during (insert medical procedure)" means brain so messed up by seizures did not know what was happening. You're in for a huge shock when you have your next EEG hookup... This is great!! He is reacting like a normal child. He is fighting against medical stuff. They call me the baby whisperer in the hospital cause I can calm Emma by singing. The last three CTs we did were without sedation. "Old MacDonald" is not a sedating song by the way but "Frere Jacques" and "How much is that doggy in the window" are.
Glad Trevor is doing so well. He had major surgery but it was done by a rockstar. That counts for something. Its intense because he is processing the whole world now, not just what his brain let slip through the gates. Welcome to the whole world Trevor. Theres so much to feel, taste, see, smell, hear.
Glad they were able to get a scan done though. But as Jen said, of course he fell asleep after....Murphy's Law....gets ya every time!
Is Trevy's hair still curly?? I love those curls of his!
Erin...seriously! People are weird!
Jen...kids! And he was out out. Not just lightly out. lol
Barbara...I like to throw out a skeleton in the blogger comment truth randomly! And I really DO love Thesuarus.com! I also loved your big word usage!
Sinead...
"Its intense because he is processing the whole world now, not just what his brain let slip through the gates. Welcome to the whole world Trevor. Theres so much to feel, taste, see, smell, hear."
Thank you for saying THAT in THAT way! So beautifully said that I wished I'd thought it up!
Bibi...ha. Well, if Trevy grows up to resembled Uncle Nathan in character...I'll be happy!
...danielle
I ONLY WISH!
Wauugggggggggh!!!!!!!!!
As I have said before...Your boy is "waking up"....Just at the wrong times!!!!
Love y'all!
Cyndi
How about a nurse that can cut hair?? Cool beans. (Can't wait to see the pics when Jonathan buys you your nifty little hard drive!) I almost spit out my water when I read what she said too...HILARIOUS!!