at this point I'm convinced the hurlies are viral. Rather than pressure.
I woke up smack in the middle of the other night with the room spinning. Literally. It was the weirdest feeling! The security lights peeping through the curtains began forming a swirling halo around my head. I tried laying back down and closing my eyes. Didn't much help. My world was still rolling. Reminded me of Aunt Deb who has been dealing with this vertigo feeling for awhile now. Except mine passed. And the next morning I was fine. But Aunt Deb...I can now imagine what it feels like...ugh.
This morning finds Jonathan and Bristel curled up together in bed. The bed which I covered in plastic and towels...just in case. Not to be too graphic...but Bristel is good at hitting the bucket. Toby? Let's just say I hope the bug hops right over him!
I know you guys really aren't here hoping to catch up on the latest sick news.
I know why you're here.
I know who you're stalking.
And I want to share him with you. I desperately want to. It's been burning in my heart for days now. Stealing sleep. Sadly...not appetite.
I just can't climb over this hump of how. How do I convey all of this?
I want to pour every emotion out so effectively that even the unsuspecting reader that just happens to stumble here...will feel it.
And click away changed. From the core out. By the power...by the courage...by the magnitude of not just Trevy. But of every IS child. As we...our family as a whole unit...have been deeply changed.
And so has been my soul struggle.
Because when I tell you that we have a new nickname for him.
I fret the response to be, "awwwww...how sweet".
Which although nice...misses the essential.
I crave for your hearts to jump up and over the moon likes ours does every time he plants a slobbery one on us! He's given me so many smoochies these past few days that I'm not sure my heart will ever land. It's soaring away on wings of hopful abandon!
His kisses represent a treasure that once upon a time...when the Seizure Monster was dormant...we had. But then the Beast woke. And stole the treasure away. Where it was buried under disorganized brain waves somewhere in Seizure Land. And over time thought never to be found.
See...the miracle to me is more than the the sweet lips and peeping tongue sandwich. That I can't get enough of.
It's also that the kisses have been there all along! Masked by saturating seizures. Waiting for the key to calm the storm inside and unlock the treasure chest...
And now here we are. Staring inside this glittering gleaming Hope Chest. And stealing kisses from it like there's no tomorrow...
Because our hearts still remember when tomorrow was stolen away from us.
And to us that means that sometimes...
a kiss is WAY more than just a kiss!
(now watch the video below!)
It's a treasure!